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    #31
    Originally posted by keno View Post
    I am under the Royal Stoke hospital and once I got the diagnosis all hell let loose and I am inundated with OT, Physios, and a support nurse who answers my email within the hour.
    My GP practice is also helpful.
    I can't complain at all.
    I am also lucky in Milton Keynes/Oxford where we have an extremely proactive specialist MND nurse supervisor and team and had the same good experience. In fact the first month/6 weeks was full on exhausting!
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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      #32
      I was with Salford Royal but they seem to have forgotten about me. πŸ˜•xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #33
        Originally posted by matthew55 View Post
        I was with Salford Royal but they seem to have forgotten about me. πŸ˜•xx
        Name and shame them on Twitter😑
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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