Hi my name is Lyn. My husband Robert was diagnosed 16 years ago with PLS. I have been on the forum before when he was first diagnosed but because his progression has been so slow have not been on for some time. He now progressed further… speech is getting worse and he is becoming very unsteady. He manages to move around the house on his Walker and we use a wheelchair outside. He is being fitted for an electric wheelchair which at the moment he does not need in the house. This of course means that we will have to think about transport and know that we can get a car with the help of our PIP. He visits Papworth every 6 months for his breathing and we have asked out dr to refer us to the care centre at Addensbrooke.
I think we are now getting to a stage where I will need some support from the forum so this is why I am re-introducing myself.
Looking forward to chatting with you all.
Lyn x
I think we are now getting to a stage where I will need some support from the forum so this is why I am re-introducing myself.
Looking forward to chatting with you all.
Lyn x
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