Hi, I’m Sue

[Susie]

Just thought I’d say hello.
My official diagnosis date was 10th Feb 2021, although I was told by GP and consultant just before Christmas 2020 that they thought it was MND.
Mine started in the right leg and I am now permanently in a wheelchair and cannot walk or stand. Transfers are becoming difficult.
My body is failing me, but I cope by not letting my happy, smiley personality desert me.

[keno]

Welcome Sue

[WheelsOfSteel]

Hiya Sue, and a warm welcome to a club no-one wants to be a member of.
I only joined a couple of weeks ago. We are all here for each other.
*Hugs*

[LindaB]

Welcome Susie & welcome to the forum. Lots of good people on here with sound advice & support.
Look forward to reading your posts and getting to know you.
🤗😉

[Lynne K]

Susie welcome here. Lots of friendly people here, advice, sharing tips and listening ears when we all need that. Love Lynne xx

[matthew55]

Warmest welcome Susie may I say you seem to have a very important weapon in your arsenal. Positive Mental Attitude. Personally I take what I call happy pills. I loved prozac until they discovered it was damaging my heart! Well done for joining the nicest bunch of people you will ever find online. Stay Strong and Stay Sane. 💪👀💐😁xx

[Ellie]

Susie A warm welcome to the forum Sue, thanks for posting.

Has your OT assessed you yet and provided equipment to make it easier and safer to transfer?

My body is failing me, but I cope by not letting my happy, smiley personality desert me.

Brilliant attitude Sue, it will count for more than you know 👍👍

Love Ellie, a fellow smiler 😘

[Mary C]

Susie
Welcome to the forum.Hope you get advise on transfers via OT.There is equipment that might help you.Looking forward to hearing more from you.
Best wishes
Mary

[Gordan1111]

Welcome ie

[Deb]

Hello Sue and a warm welcome to the forum from me.

I'm so sorry for your diagnosis but I'm glad you've found us as the forum is a good place for friendship and support. ( and we have laughs too !)

Its lovely to hear you are keeping your upbeat and positive attitude to life. I try to be happy and smiley too although i do allow myself the very occasional down day... usually a duvet day !!

Take care of yourself and I look forward to hearing from you again,
Love Debbie x

[Rosemary6NT]

Susie Hi Sue, welcome. Sorry for your diagnosis. I’m fairly new here but it is a very friendly and informative group.

[Susie]

Thanks for the warm welcome everyone. I am getting lots of help from OT. They’re amazing, but we’re struggling to keep up with my mobility changes which seem to be happening quite rapidly over the last couple of months.
I’m really excited to be getting my powered wheelchair at the beginning of December which will mean I can get a WAV which will make life so much easier as I can no longer transfer into our car.

[Ellie]

I’m really excited to be getting my powered wheelchair at the beginning of December

Bet you never thought you'd say that Sue 😏😉🤗😘

[Susie]

Ellie, you're so right there.
On Thursday OT brought me a Stand Assist to help with transfers. We managed to use it successfully while they were here. We felt elated and relieved. However on Friday we tried to use it to get me into the shower chair and failed miserably. Both feet kept lifting off the footplate and I was left dangling very uncomfortably. After several tries, we had to give up and go back to the handling belt and Mark physically lifting me from the wheelchair to the shower chair. We felt really down all day, which is unusual as we are normally very resilient and cheerful. Today we try again so fingers crossed, but no idea what we were doing wrong. 🤞🤞🤞

[EvelynMW]

About powered wheelcchairs. I recently made an extreemely small investment in Fredon One Life. They have completely redesigned a powered wheelchair, with a large battery, which is getting great reviews. Probably expensive, but worth looking at. I believe they said the battery lasts longer than in others

https://freedomonelife.com/