Morning all,
I'm coming out of the shadows after reading so many helpful posts on this forum. Husband (now aged 56) diagnosed with MND in 2018.
Started with left foot drop and intense fasciculations. Now can no longer walk, talk, eat, but still has use of hands and arms (although arms very weak). On NIV overnight, feeding pump in the day and just had training on new cough assist. Also has grid pad and eye gaze. I've had to give up work, despite having a decent care package funded by CHC. Hence why I have a bit more time for this forum.
Just wanted to break the ice and touch base........ and.... say how fab you all are on here.
I'm coming out of the shadows after reading so many helpful posts on this forum. Husband (now aged 56) diagnosed with MND in 2018.
Started with left foot drop and intense fasciculations. Now can no longer walk, talk, eat, but still has use of hands and arms (although arms very weak). On NIV overnight, feeding pump in the day and just had training on new cough assist. Also has grid pad and eye gaze. I've had to give up work, despite having a decent care package funded by CHC. Hence why I have a bit more time for this forum.
Just wanted to break the ice and touch base........ and.... say how fab you all are on here.
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