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    Hi I'm new here!

    Hello my name is Jo. I lost my husband to MND in June this year, 7 months after diagnosis, although he had many symptoms before this. I miss him very much, we had 38 years together in a happy marriage. I feel very lost as so many of you must know after caring for him 24 hours daily, with help from carers.
    Just to let you know that I have knowledge of services available, which drugs worked for my husband,etc,etc. But most of all I'm here if anyone just wants to talk to somebody who knows exactly what your going through.
    Take care all! Xx

    #2
    [email protected] A warm welcome to the forum Jo, so sorry to hear of your beloved husband - heartfelt condolences to you.

    As you said, caring for him was all encompassing and intensive, so your loss is physical, as well as deeply emotional.

    There are others here in the same situation, so you're not alone.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Hello Jo. And welcome. I can only echo Ellie's kind words above. You are very brave and so thoughtful to be thinking of others with how you could help. I am so very sorry for your loss. I hope you are coping and getting some support. Take care x

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        #4
        [email protected] welcome to the forum and sorry to hear of your loss. Look forward to reading your posts and getting to know you. How thoughtful to be thinking of othersπŸ€—
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Welcome Jo
          It's all funny

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            #6
            Hi Jo, I'm sure you will be a valued member of our jolly clan. Welcome πŸ€—πŸ‘πŸ˜πŸ˜˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              #7
              Hi my name is Yvonne, I received my diagnosis in May of this year. Speech started to change August 2020. Currently speech is slightly slurred, still very mobile. Remain positive minded, keep fighting the fight everyone πŸ’ͺπŸΎπŸ€—πŸ₯°

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                #8
                Welcome
                Yvie J
                Forum Member
                Yvie J to the forum and to people who are very supportive and occasionally funny. Look forward to hearing from you.
                Take care πŸ˜‰πŸ˜˜
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  #9
                  [email protected]
                  Yvie J
                  Forum Member
                  Yvie J

                  Welcome, I've only recently joined and found it's a lovely place to be. x

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                    #10
                    Welcome Yvonne it sounds like you are starting just like me. I'm sorry to meet you but glad you're here. πŸ˜πŸ€—β˜ΊοΈπŸ˜™xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Hi Jo sorry for your loss - and welcome from us all xx

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                        #12
                        [email protected] Jogreenham so sorry for your loss. Welcome and thanks for offering your expertise.

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                          #13
                          Hi jo lovely to meet you and that's a lovely offer and really look forward to hearing from you.

                          Hi Yvonne welcome to you too.

                          Hope you both feel really at home with such wonderful people.

                          πŸ₯°πŸ˜˜πŸ€—πŸ₯°
                          when i can think of something profound i will update this.

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                            #14
                            hello
                            Yvie J
                            Forum Member
                            Yvie J sorry for your diagnosis, but welcome. This is a lovely forum.

                            Comment


                              #15
                              Yvie J
                              Forum Member
                              Yvie J A warm welcome to the forum Yvonne.

                              Love Ellie.
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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