Morning
I've been lurking round these boards for a few months whilst my Dad went through all the tests and sadly yesterday he was formally diagnosed with MND. We are all utterly devastated,
I have lots of questions but my main concern right now is getting all the help in place he will need. The neurologist yesterday was hopeless, my Mum said they weren't even in the room 15mins, he gave the diagnosis and said the clinical nurse specialist would visit next week.
No mention of the type, genetic implications, no follow up with neurology, shouldn't he now be under a specialist? He mentioned the drug but basically said no point it only gives you a few extra months.
Am cross they weren't given proper support yesterday, it was basically you have MND, the nurse will deal with you.
I've been lurking round these boards for a few months whilst my Dad went through all the tests and sadly yesterday he was formally diagnosed with MND. We are all utterly devastated,
I have lots of questions but my main concern right now is getting all the help in place he will need. The neurologist yesterday was hopeless, my Mum said they weren't even in the room 15mins, he gave the diagnosis and said the clinical nurse specialist would visit next week.
No mention of the type, genetic implications, no follow up with neurology, shouldn't he now be under a specialist? He mentioned the drug but basically said no point it only gives you a few extra months.
Am cross they weren't given proper support yesterday, it was basically you have MND, the nurse will deal with you.
Comment