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Awaiting firm diagnosis

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    Ellie - thank you so much for your reassurance. It really is helping me. I know you must have come across people like me on here a million times, so I do appreciate you taking the time to chat. If I can find a way to improve my energy levels then that would be great. Although I'm still aiti g to be told I'm a fraud... 😆

    Doug Carpenter - yes, I believe I've been referred to Annabel Nickol, but we spoke to someone called Harriet on the phone. I'm hoping the readings are all fine, but good to know I will have options and support if I do need it. I am so grateful for all these kind words. I feel like a slowly relaxing spring... just don't mention Christmas!

    Managed to eat loads more today too, so I must be feeling more settled xx
    Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

    Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

    Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.