Announcement

Collapse
No announcement yet.

Newbie looking for the latest info

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • matthew55
    replied
    Went to the gp back in January 2020 when my voice changed. The rest is history. πŸ‘€πŸ€—πŸ˜πŸ‘Œxx
    ​​​​​

    Leave a comment:


  • Worsleybird
    replied
    Hi Swaite! same as you, Bulbar diagnosed in July (after started slurring with speech in April 2021), I know how terrifying it can be, worrying you will choke or people just cannot understand what you are saying. Stay strong and like other say just take one day at a time and try not to think about the future.

    Leave a comment:


  • Susie
    replied
    Swaite! welcome from me too

    Leave a comment:


  • Gordan1111
    replied
    Hello Swaite! too have bulbar onset and seem to about the same stage as you with speech and swallowing. I wish I could suggest something useful. Maybe tomorrow who knows. xx

    Leave a comment:


  • Lynne K
    replied
    Swaite! Welcome here too from me. X
    Last edited by Lynne K; 7 December 2021, 15:52.

    Leave a comment:


  • matthew55
    replied
    Welcome Swaite! to our family. Here you will find help, support and love in abundance. Sorry to see you but happy to meet you. πŸ™πŸ˜πŸ€—πŸ˜xx

    Leave a comment:


  • Zante
    replied
    Swaite! Again welcome from me, and I too am so sorry you have had to join this forum. That's really good to hear you are participating in a drugs trial already. Hopefully it will be a trial that helps you and will be helpful for the future. I hope you find help and support here and some laughs also which are much needed. take care xx

    Leave a comment:


  • PeterPan
    replied
    Swaite! I’m sorry you’re here too. I’m confident you’ll get a full range of experiences from friends in this forum.

    Leave a comment:


  • LindaB
    replied
    Swaite! Sorry you find yourself eligible to join us in this forum....but very glad to say you're among friends and the support here is amazing as I'm sure you've gathered reading the various threads.
    It's great you're straight into a trial and I hope you keep us posted. Fingers crossed it's the 'real deal' although your participation helps us all....thank you.
    Look forward to getting to know you virtually...take care.
    πŸ‘πŸ»πŸ˜‰

    Leave a comment:


  • Swaite!
    started a topic Newbie looking for the latest info

    Newbie looking for the latest info

    Good morning, I just joined this group, and like so many others with ALS, always searching for more information. I was diagnosed in July 2021 with bulbar ALS after a year of being told I had Bells Palsy. Seems inconceivable that a definitive test for this disease hasn't been developed in over 150 years. I started in a Healey drug trial last week and hopeful I received the medication and not a placebo. I'm becoming almost impossible to understand when I talk and swallowing issues are increasing. Hope to learn from fellow ALS patients in this forum and to add anything that I can from my experience.
Working...
X