Hello

[LindaB]

Doggymama morning sounds worrying for you both. I wonder if youre yet linked in to your local hospice...they are very good at home visits and support. Maybe e-mail the MND specialist and tell them of your concerns.
Best wishes xx

[Mary C]

Good morning,Doggtmama
Really hope your husband gets an assessment today and some advise.I guess as yet he isn’t linked to a respiratory team at a hospital as a recent diagnosis.
Maybe start with the GP.As Ellie said carbon dioxide build up the blood can lead to waking with headaches.I don’t know what the treatment would be.
I just know every time I go to the respiratory assessment they measure carbon dioxide and ask about headaches.
Best wishes
Maryx

[Ellie]

Doggymama Have you a fingertip monitor to measure his oxygen levels (pulse oximeter)?

The 'cure' for headaches caused by CO2 retention is to use non-invasive ventilation (NIV) I wouldn't be too quick to blame MND for all of this...

Hopefully he will get input from his GP or other HCP.

Best wishes xx

[Doggymama]

Thanks Ellie, I’m wondering if stress and anxiety may be to blame. He has had a bit better day today. Headache wore off quite quickly this morning xx

[Ellie]

I’m wondering if stress and anxiety may be to blame. He has had a bit better day today. Headache wore off quite quickly this morning

At least he had a better day today.

Stress could be a contributing factor for sure - sending his BP sky high; causing tension heaches; altering how he breathes etc.

Sleeping with his head/upper body may help his overnight breathing.

Keep an eye on him. xx