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  • Doggymama
    replied
    Thanks Ellie, I think my husband would gladly accept counselling. We are taking one day at a time at the moment, seems the only thing to do. X

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  • Ellie
    replied
    Doggymama The aftermath of the diagnoses bombshell is truly horrendous and your husband's tears are entirely normal and understandable.

    Generally, the first visit to the MND Clinic you will both meet the Consultant and, depending on how your husband feels and how the clinic operates, he might be seen by a Physiotherapist, Occupational Therapist, Respiratory specialist (sometimes it's the Physiotherapist initially) or appointments might be made for these services.

    This is from the RVI website:
    "Our service is managed by a consultant neurologist specialising in MND. It includes a team of dedicated MND care coordinators (with backgrounds in nursing and occupational therapy) and a dedicated senior physiotherapist.

    Our staff work in close partnership with speech and language therapists, dieticians, physiotherapists, occupational therapists, psychologists.

    The identification and control of key symptoms is at the heart of our holistic approach to MND management. The MND specialist care coordinators help to synchronise care and specialist rehabilitation services for symptom management. They also help with equipment or carer support as necessary. They run support groups for patients, their families and carers to discuss aspects of the disease, its management and their concerns."


    Would your husband be open to having counselling, and you? xx

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  • Piglet
    replied
    So sorry to hear about your husbands diagnosis. I remember almost five years ago when my husband was diagnosed it took us all about 6 months before we could discuss and accept it. It will get easier and you will be supported well with various professionals. I wish you and your husband strength at this initial stage and it will get easier to accept and manage in the near future x

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  • Lynne K
    replied
    Sorry that I cannot answer your questions but wanted to welcome you and your husband xx

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  • Doggymama
    started a topic Hello

    Hello

    I have previously posted on the MND connect thread when we were waiting for the diagnosis, which we have now had. My husband was only confirmed as having MND a couple of days ago. We are waiting to be referred now to the specialist Neurologist, can anyone let us know what to expect will happen next? The neurologist we saw told us of riluzole and research trials but we were in such a state we just didn’t know what to ask. My husband is so upset I don’t know how best to console him, it’s truly heart breaking.
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