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    Journey

    My name is Mark, Wednesday of last week i was told / diagnosed with MND.
    i am 58 ( today )
    not the best birthday present
    i thought i would start this journey hopefully with like minded people
    so to all
    Hello

    #2
    [email protected] Hi Mark. Sorry to hear of your diagnosis & no certainly not the birthday present anyone would want. Devastating and the 1st week's I found the worst as I processed the information.

    Yes like minded people on here who are always on hand to offer support and advice.

    Look forward to hearing from you. Have the best day you can, birthdays are precious👍🏻🎂
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      Thankyou

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        #4
        [email protected] I’m sorry that you got such an awful birthday present. Welcome to our forums of similarly afflicted people. Support, advice and banter is here whenever you feel the need. I hope that your local support services kick in quickly, Lynne x
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          #5
          Hello Mark welcome

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            #6
            Hello Mark. Coming to terms with the diagnosis is a very hard time for you and your family. I was diagnosed 2 years ago this week. It’s never easy for anyone but for me with time has come acceptance. I try to enjoy what I can. We all get down days but the forum is a great link to likeminded people. Welcome. Lizzie

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              #7
              Hi Mark and welcome
              I was diagnosed in July at 74 years old
              Support here as been great (Stoke on Trent)
              I live alone so have no choice but to cope
              It's all funny

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                #8
                [email protected] A warm welcome to the forum Mr Darcy 😉😘

                You'll find lots of friendly advice, shoulders on which to cry, laughter and good humoured banter on the forum.

                Happy Birthday Mark 🎂🥂🎁

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #9
                  Hello Mark and welcome
                  s.
                  As long as there’s golf and beer I’m happy

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                    #10
                    A warm welcome to the forum Mark.

                    I'm glad youve found us because the forum is a good place for friendship and support from people who really understand. Although it is probably hard for you to appreciate right now but we also have fun and a good few laughs.

                    Well done for posting so soon after your diagnosis because the early days are so overwhelming and shocking.

                    Take care and I hope your birthday is as good as possible.
                    Love Debbie x

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                      #11
                      Hi Mark,
                      glad you joined the forum.Ask any questions.The members on here have been through so many things and always willing to share advise.Early days for you .It’s a shock to get the diagnosis but hopefully your support team will be in contact soon.
                      Hope your birthday is as good it can be given this news.
                      Best wishes
                      Mary xx

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                        #12
                        Happy birthday Mark, I’m sure you’ve had better! Hopefully this forum will help you with any questions you may want to discuss.It is very daunting at first getting your head around things. I hope you are well supported with family and professionals.x

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                          #13
                          Welcome Mark. I think it took me 6 months to come to terms with my husband's diagnosis. It's over 3 years since he was diagnosed and he is still in great spirits.

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                            #14
                            Welcome Mark. Everyone is lovely on here and will help and advice you.

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                              #15
                              Hi Mark, I was diagnosed just over a year ago when I was 59. It’s such a difficult time, I found it all very overwhelming. Hope we can offer some support

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