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    #46
    Hairbsb - they have made their recommendations and will take them back to the council. So who knows what will happen. I don't feel in control of any of this. It's like I'm desperately clinging to the back of a bobsled going downhill fast...
    Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

    Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

    Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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      #47
      TinyLady not being in control or knowing what's going on is stressful to say the very least. Moving slowly is stressful moving quickly is stressful.

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        #48
        Hi
        I also was told just before Christmas i would wait up to a year. I received the letter warning of a waiting list. Don’t worry it happened in 2 months and mine was delayed by neurology insisting on stupid carpal tunnel testing. First diagnosis 2 days ago and i fear there’s lots more appointments ahead. Keep on at the gp with all changes and things can still be nhs quick.

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