Hello, I've been around on here for almost two months now. I've been plucking up the courage to say something. I haven't had a diagnosis as my GP only referred me at the end of December xx
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Cat lady
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Cat lady hello there. I hope that your diagnosis turns out to be something better than MND but if it is youβll have us to support you as we do for each other xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Originally posted by Cat lady View PostHello, I've been around on here for almost two months now. I've been plucking up the courage to say something. I haven't had a diagnosis as my GP only referred me at the end of December xxDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Hello Cat lady - I hope you are seen quickly and you get good news. This is a lovely, friendly group for support xDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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Cat lady A warm welcome to the forum.
Was it your GP who mentioned the possibility of you having an MND or through your own research? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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