Hello, I've been around on here for almost two months now. I've been plucking up the courage to say something. I haven't had a diagnosis as my GP only referred me at the end of December xx
-
Last edited by Cat lady; 20 January 2022, 14:52. -
Hi Cat lady here's hoping it's not the diagnosis that you fear. πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
Hello Linda and thank you for replying xxComment
-
Hello and welcome
Hope it all turns out OK for you but if not your among friendsIt's all funnyComment
-
Thank you Keno xxComment
-
I know well where you are. Stay Strong Cat lady ππ»πͺπ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
-
Thank you Matthew, by the way I love your jokes xxComment
-
Cat lady hello there. I hope that your diagnosis turns out to be something better than MND but if it is youβll have us to support you as we do for each other xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
-
Hello and welcome. I hope you do not have to wait too long for a diagnosis and hope it is not the one you dread. xBulbar onset diagnosed Nov 21. No speech but limbs ok so far.Comment
-
Welcome but I hope it turns out to be a false alarm.Originally posted by Cat lady View PostDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
-
Thank you all xxComment
-
Hello Cat lady - I hope you are seen quickly and you get good news. This is a lovely, friendly group for support xDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
-
Cat lady A warm welcome to the forum.
Was it your GP who mentioned the possibility of you having an MND or through your own research? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
-
Hello Ellie, I had been having muscle twitches and pain and stiffness so I mentioned it to my GP and asked if she would refer me and she did xxComment
-
Hi Cat lady . A warm welcome to our friendly group.
The worry and uncertainty are so stressful. I really hope your symptoms turn out to be something different but if not we are here for you. XxComment
Comment