Hello all

[Deb]

A warm welcome to the forum from me Fraxinus .

As others have said you will find friendship, understanding and good support on here. Your positive attitude will help you too 🙂

Love Debbie x

[Hairbsb]

Fraxinus thank you x I need to get myself to work. There was a programme on TV like pottery throwdown with wood. Mesmerising. Perhaps now is the time for me to try pottery x have a good day at work. Love the work malarkey. It should be used everyday haha

[Fraxinus]

Good morning all,
Rosemary6NT yes, there is a big beautiful Ash tree nearby.
I always love watching someone working wood. YouTube has some great channels, it’s hypnotic as times. I follow the young lad Eric Grankvist building a log cabin by hand, in Sweden I think.
Ellie thank you for the clarity, I must keep reminding myself this!
Hairbsb sending you big hugs, I’ve not tried reiki, enjoy your session today. I find box breathing and pranayama help calm my mind, useful when the brain keeps going in circles when you’re trying to sleep.
Stubot many thanks, the good lady is using a different forum at the mo, I do love the support and vibe here! Yes we shall be making the most of any help provided.

A big thank you to all that have commented xxx

Time to logon for work, I think I prefer this working from home malarkey

[Rosemary6NT]

Hello Fraxinus is that excelsior? One of my favourite woods to work with (or I used to work with)

[Ellie]

We did ask the Neurologist if anything else was being considered, the answer was no. Is this a fair answer?

In answering your question, the Neurologist would have considered your clinical exam findings in conjunction with the EMG results, and it's not a diagnosis which should be given lightly.

Might the MND Specialist disagree with the first Neuro, perhaps, it's not confirmed until it's confirmed. xx

[Hairbsb]

Fraxinus I am awaiting confirmation also. Such a stressful time also. Positivity is key. But we are only human after all. I have healing once a week and my first session of reiki tomorrow to help my mind as well as my body

[Fraxinus]

Thank you everyone for the warm welcome!

Ellie you are correct, no OT assessment yet. I’m lucky enough to have a small holding & as it’s quite steep and uneven in places, I’ve been using walking poles to stop the number of falls I was having. Last fall was getting out of the car, fell backwards with no warning and just missed getting a good wallop on the back from a wooden planter. Thankfully just a bruised bum!
Yes the EMG identified an issue mainly the legs but also in the torso and arms but at a lower level. I wish I knew more about the results.
We did ask the Neurologist if anything else was being considered, the answer was no. Is this a fair answer? I believe a small number of people do get misdiagnosed, what presents in similar way to MND?
I have been prescribed Riluzole and the local hospice’s MND specialist team is being notified.
I think this is why I feel the 2nd opinion will confirm the 1st.

Thanks again to you all.

[Piglet]

Fraxinus welcome to the forum. You sound quite positive which is great. You could be stable for several years so continue with your plans and positive thought process xx

[WheelsOfSteel]

Welcome Fraxinus, pull up a chair and join the crew.

[Stubot]

Fraxinus Hi, nice to virtually meet you. No apologies needed for the brain dump! Focusing on enjoying the now is a very good mantra to live by. As a career for my wife for the last 2 years I have a good idea what your fiancé is going through. Counselling has helped me enormously - the MNDA can help with that. This is a very supportive group, and might be helpful for your fiancé too.

[denise]

Fraxinus

you really have a great attitude which will really help you and support everyone else that needs a boost.

Love and hugs
Denise xx

[LindaB]

Fraxinus hello and welcome to the forum. Not really the place any of us wanted to be but now we're here it's a good space.
Great to be planning some fun things to do....there is still a life to be lived. Look forward to hearing from you😉🤗

[Doug Carpenter]

Nil desperandum Fraxinus.

Doug

[Hairbsb]

Fraxinus hello x

[Ellie]

A warm welcome to you and to your fiancé - good to have a Latin scholar on board 😉

Hopefully your appointment with the ALS Specialist is soon. Given your diagnosis isn't official, does that mean you haven't been assessed by an OT yet, or was it they who supplied the stick?

I’ve had EMG/NCS & full back MRI. MRI was clear.

Does that mean that the EMG was abnormal? xx