Hi everyone,
I was diagnosed with MND/ALS in November 2019. My walking had been deteriorating for around 8 months, including falling more and more frequently. I completely lost the ability to walk just three weeks after my diagnosis.
When the consultant came and gave me the diagnosis, I told him that I wanted to be a guinea pig for anything: drug trials, surveys, examination by medical students, even a pin cushion for student nurses! I felt that I wanted something good to come from this - and I still do. It helps me to cope, knowing that others might learn by using me.
I hope no-one will mind but I don't feel ready to use my given name on here, yet.
I was diagnosed with MND/ALS in November 2019. My walking had been deteriorating for around 8 months, including falling more and more frequently. I completely lost the ability to walk just three weeks after my diagnosis.
When the consultant came and gave me the diagnosis, I told him that I wanted to be a guinea pig for anything: drug trials, surveys, examination by medical students, even a pin cushion for student nurses! I felt that I wanted something good to come from this - and I still do. It helps me to cope, knowing that others might learn by using me.
I hope no-one will mind but I don't feel ready to use my given name on here, yet.
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