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  • Gillette
    replied
    Originally posted by Deb View Post
    I am still intrigued by your user name. I remember an ad in the seventies....
    Gillette, the best a man can get ! ?

    Love Debbie x
    Well remembered, Debbie. That's the reason for the user name: because I'm the best a man can get! Ha ha ha! Well, perhaps not so much now!

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  • Deb
    replied
    Hi Dina,

    Dont worry about your sense of humour... there is alot of dark jokes in our house sometimes. Like Kayleigh says it's a good way of coping and it can lighten the mood.

    I am still intrigued by your user name. I remember an ad in the seventies....
    Gillette, the best a man can get ! ? Obviously this was referring to razors !

    Love Debbie x

    Leave a comment:


  • Kayleigh
    replied
    Welcome again, Dina.

    I think your posts are great and although you have not been a forum member for very long, you are already making a considerable and valuable contribution to it - thank you!

    It is interesting how our different personalities (including different senses of humour!) shine through on the forum - and I love it when people display their style of humour in their posts!

    Its great how we can sometimes get an idea of each others personalities from what we write, although we haven't met each other in person. I think you are a kind, friendly, sassy and bubbly person - who has a determination to make the most out of life!

    A sense of humour is definitely a great attribute to bring to this forum (and all types of humour - including dry, wacky and weird are welcome here!) - of course living with MND is no joke, but I think it's good if we can lighten the mood occasionally.

    Kayleigh x

    P.S In case you were wondering, I don't look anything like Kayleigh from the TV series 'Car Share'.

    Leave a comment:


  • Sheila
    replied
    Hi Dina,
    Hello ! Lovely name. Looking forward to your weird sense of humour. I think we will enjoy it

    And as for Ellie I thought I was really talking to a chimp lol.

    Sheila x

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  • Ellie
    replied
    Hi Dina

    And for the record, I look nothing like my photo

    Love Ellie.

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  • Gillette
    replied
    I've decided to "come out" and reveal my name, which is Dina (pronounced like Tina, but with a 'D' not a 'T').

    This probably a good time to let you know that I have a weird sense of humour. I apologise now if I offend anyone, I promise it won't be deliberate. If I do upset anyone, please just tell me to shut up.

    Leave a comment:


  • Gillette
    replied
    Originally posted by Lynne K View Post
    Hi Gillette, thanks for getting back to me. I'm going away for 11 days this Friday (Good Friday). So when I'm back maybe we could meet up on or after Wednesday 1st May. See you soon. Lynne x
    Hi Lynne, I hope you have a great time while you are away. If you give me a shout once you're back, we can agree a time and place to meet. Looking forward to it. Gillette

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  • Lynne K
    replied
    Hi Gillette, thanks for getting back to me. I'm going away for 11 days this Friday (Good Friday). So when I'm back maybe we could meet up on or after Wednesday 1st May. See you soon. Lynne x
    Last edited by Lynne K; 17 April 2019, 19:15.

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  • Gillette
    replied
    Originally posted by Ellie View Post
    Progression often comes in phases - a period of fairly relentless progression can be followed by a fairly benign period.

    Best wishes to you.

    Love Ellie.
    I didn't realise that progression can speed up and slow down. Thank you for mentioning it.

    Leave a comment:


  • Gillette
    replied
    Hi Boiler68. I saw Dr Hamdallah whilst I was an in-patient - he brought a group of his students to examine me. I haven't seen Amina Chaouch.

    Leave a comment:


  • Gillette
    replied
    Hi Deb. I have to use a wheelchair as I cannot walk, weight bear or transfer. Going out can be problematic as there is a shortage of dropped kerbs around the area where I live, meaning that I have to go on the roads, which is not ideal.

    Leave a comment:


  • Gillette
    replied
    Hi, Lynne K, I also live in Radcliffe! Sorry for the delay in responding to you - life seems to be a blur of carers, OTs, Physios, SALTs, palliative care nurses, drug trial days and anything else you can think of. I am definitely being well supported by the various community teams. I have had manual and powered wheelchairs provided. I have been amazed at the equipment provided - and all free of charge.

    If you fancy meeting for coffee sometime, give me a shout.

    By the way, sorry to disappoint you but I am FEMALE. Ha ha ha! The nickname refers to something other than a mens' razor.
    Last edited by Gillette; 17 April 2019, 12:09.

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  • Boiler68
    replied
    Hi Gillette. Welcome to the forum. My husband is under Salford Royal too..he started off with John Ealing for a few years, then Mr Hamdallah and now Amina Chaouch. You’ll find lots of support and good advice here.
    Best wishes
    Boiler x

    Leave a comment:


  • Deb
    replied
    A warm welcome to you Gillette, although I am obviously very sorry for your diagnosis.

    Like Lynne, I am sorry for my late reply, I think I must have missed your original post. Dont worry about not using your name, your user name is great. It took me a while to tell even close friends about my diagnosis because i needed to come to terms without myself.

    I hope you have good help and support to avoid falls and to keep safe. Ironically I had less falls after my diagnosis because I stopped struggling to walk and used a wheelchair. I still can walk a few steps using a rollator at home as long as I have supports to lift my feet and I use it to transfer. We do go out every day... Most places are wheelchair accessible although sometimes it involves a little homework first.

    There is always really good practical advice and emotional support on the forum.
    Take Care, Gillette.
    Love Debbie x

    Leave a comment:


  • Lynne K
    replied
    Hi Gillette, your chosen name brought a smile to my face. You must shave regular so are male

    I'm sorry about my late reply. I haven't been on forums as often in the last week or so and when I did I just dipped in and didn't read all. I've been otherwise occupied.

    Welcome to our forums. I'm also sorry that you've had to join us. I'm also with Salford Royal under Amina Chaouch, lovely doc and great team. We're now living in Radcliffe, a little closer to Salford than we were (Bury) up until November 2018.

    About not feeling comfortable using your real name yet. I can understand that. I jumped in with both feet and used my name when I rejistered but had some regret soon after when I realised at that time that forums were set to 'public.' But I was happy to receive notification recently that this had been changed to 'private.' That made me much happier and I hope that it can reassure you.

    I'm still (just about) getting around at home using my walker (some falls happen) but outside it's too much risk so my husband pushes me in my lightweight travel wheelchair. I hope that the services have sorted you out with wheelchairs.

    Take care and chat soon. Lynne

    Leave a comment:

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