Hi . New here, need some advice please

[Earpy]

Hello everyone.
I’ve been having all these symptoms now for 4 months
muscles aches, twitching spasms little like hiccups in my muscles but especially in my calves then in my stomach feels like bubbling butterflies .
fatigued.
tongue twitching, jaw clenched like grinding
Can’t sleep,as when I do a big rush comes all over me and thats It I can’t sleep as I’m seeing things when my eyes are closed .
Words coming out wrong, having to think on what to say.Not slurred yet though although have stammered.
My right foot is always like up from the floor when standing , Balance issues,dizziness catarrh at the back of my like I keep having to all the time throat .
tremors, , very cold a lot.
Finally got to see a doctor and she’s very concerned.But the waiting list is huge to see a neurologist on the nhs
So I went and paid to see one,the look on his face said it all to me .I think he knows as is sending me for a EMG on the next 4 weeks
I’m trying to stay hopeful but I guess all these symptoms I’m having are connected to MND.
If it’s possible I would like to know your first symptoms were they like mine and did you all have a EMG ?
Thank you

[Ellie]

Earpy Did the GP and/or the Neurologist mention MND or is that your thinking?

And all these diverse symptoms appeared in the last 4 months more or less simultaneously, just to get the full picture?

[Earpy]

They haven’t said just seeing me for a Emg on Monday

[Ellie]

Not long to wait - make sure you get the full EMG report.

[Earpy]

Not long to wait - make sure you get the full EMG report.

I take it there’s a good chance it is mnd ,I also have spasticity now

[Dartmoorian]

Hi
i guess it probably depends on where you live but even though i was warned of a long wait it was only 3 weeks to see neurology and testing being done on the 12th. NHS can be quick ish.
Very similar symptoms except my heart beat slows to a beat below 60.
I find the right music calms, distracts and helps find sleep. For me calming music like Enigma or Shinnobu. Loud ish. Whatever is calming and distracting for you. Find something else to concentrate on. I find distraction is key.
Whatever to not concentrate and worry.
Good luck with your testing and i hope for your sake they say it isn’t.
A hope i still try to cling to!
They’re a fabulous and helpful lot on here. I am pretty much at the same stage as you and they have made it all much easier.
Probably a better combined knowledge of it than any consultant!