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  • Ellie
    replied
    Hi Kitty,

    I'm glad a cause was found for hubby's issues but sorry the damage caused isn't fully repairable.

    It must be a huge relief that his surgery went well - operating so close to the spinal cord and all.

    Hopefully his rehab period goes quickly and he's soon back home where he belongs!

    Please don't feel bad about joining the Forum, you had legimate fears to do so. I'm glad you found support in your hour of need.

    Thanks so much for giving us an update and I wish you both well for the future.

    Love Ellie.

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  • Music man's wife
    replied
    Thanks for the update, I was wondering how you got on.
    Best wishes for the future.

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  • Kittymcb
    replied
    Hi All,
    It’s been a while since I have been on the forum and I promised I would update with any news. After months of waiting my husband finally got a diagnosis of spinal cord stenosis at c3,c4 which was causing all the symptoms. He had spinal cord surgery on Monday and is recovering well on spinal trauma ward. Surgery was to prevent any further deterioration with little hope of improving current symptoms. When he is able he will be moved to specialised spinal cord injuries unit for some rehab. I’m so sorry that I came to this group when I really didn’t belong but I’m very grateful for the support I received on here when I was at a very low point in my life. Thank you all for all your kindness shown and I sincerely wish each and everyone of you the very best on this most difficult journey you are all facing.

    Again thanks for your time
    Kitty xx

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  • chebs
    replied
    Hi Kayleigh,
    Indi is now 10 months old and she's like a breath of fresh air... She goes dog training on Monday nights and she is coming on leaps and bounds.. Last weekend we went up to Wells-next-to-Sea (old childhood Memory) such a lovely time and indi loved running around the beach.. I took some sand from there for my memories.
    As its only a couple of hours up the coast it's somewhere I can return to.
    I'm having problems with my movement,stiffness,cramps..which then makes me tired.
    I have a meeting with the consultants begining of June, so hopefully get some answers
    love to you and yours
    Chebs xxx

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  • chebs
    replied
    Hi All,
    Thanks for all the lovely comments, I will stay in touch.
    talk soon xx

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  • shrew
    replied
    Keep us updated Chebs and look after yourself

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  • Terry
    replied
    Hi Chebs,

    Thanks for keeping us updated.

    Love Terry

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  • Kayleigh
    replied
    Hello Chebs,

    Sorry to hear about your diagnosis. Understandably, you have got a lot to come to terms with and so it's not surprising you feel low at the moment. Hopefully you have lots of support from family and friends.

    It's lovely to hear from you again. I remember the last time you posted on the forum, you mentioned that you have got a lovely new puppy called Indi. How is Indi? I expect that Indi is keeping you and your husband very busy - because puppies usually want lots of attention and regular walks!

    Hopefully, you Alan and Indi are able to get out and about a bit, so that you can enjoy the beautiful Suffolk countryside together. I expect Suffolk in the Spring and Summer-time is particularly beautiful and picturesque!

    Please keep in touch with us on the forum, as often as you would like to.

    Take care.

    Lots of love and hugs,
    Kayleigh xx
    Last edited by Kayleigh; 9 May 2019, 00:48.

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  • Lynne K
    replied
    Sorry about your news Chebs, take care. Lynne

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  • chebs
    replied
    STILL WAITING
    I haven't been on the forum for a while... this is really just an update, I had to undergo another MRI. and this has confirmed I have progessing frontotemporal lobe dementia. even though "some" are saying I have some MND signs, they are waiting to see more! I'm finding the whole process awful... I'm still having the electrode test, but as yet they are not showing changes..
    Thanks for the support I've had off Ellie,Terry etc, but will keep you informed..
    It's enough dealing with the dementia at moment quite low with it all.
    take care of each other
    Chebsx

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  • Devonmaid
    replied
    I am glad you found this forum so helpful. Awaiting diagnosis is so hard and seems to take so long. I really hope that your husband has something treatable - it sounds like MND isn't so likely which is great news. Good luck to you all.

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  • Barry52
    replied
    I have done postal voting for years since when I was working I was often away on voting day. It is very useful if you are disabled however I now feel that there isn’t anyone worthy of my support.

    Sorry, political rant over.

    Barry

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  • Dis1960
    replied
    You can also apply for an ongoing proxy vote

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  • Lynne K
    replied
    For future voting we can all register for postal votes. I did it a couple of weeks ago. Lynne

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  • Kittymcb
    replied
    Kayleigh,
    Thank you for your kindness. I have a wheelchair for him from shopmobility charity for £20 a month. I have it in boot of car for just in case. He has yet to use it. Our local council elections are on Thursday and I know he’s very keen to vote so this may be his only option. Yes I think once he sees the benefit of it,it will be used more and more. Again thank you for your kindness and I wish you all the best. I will update you all after his appointment and then I will leave the group. Thanks again
    Kitty x

    Leave a comment:

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