I'm Mike,
I was diagnosed 3 years ago with PLS, I could sort of cope, was coping, with even though I had no idea how the condition would progress. Recently the hospital repeated those electro tests (I can't remember what they are called) as a result on Friday they amended the diagnosis to ALS. I do not mind admitting I am having difficulty dealing with that.
So many questions: Are they right (I think my consultant is an idiot). What can I expect? Is Riluzole worth taking?
If you read this, thanks for taking the time. I just needed to ut it out there.
Mike
I was diagnosed 3 years ago with PLS, I could sort of cope, was coping, with even though I had no idea how the condition would progress. Recently the hospital repeated those electro tests (I can't remember what they are called) as a result on Friday they amended the diagnosis to ALS. I do not mind admitting I am having difficulty dealing with that.
So many questions: Are they right (I think my consultant is an idiot). What can I expect? Is Riluzole worth taking?
If you read this, thanks for taking the time. I just needed to ut it out there.
Mike
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