Hi I am Shona and was diagnosed with MND in November 2020. Although I have been having tests/biopsy/EMG. for several years as I had foot drop and had lots of falls resulting in fractures. Up until Tibia/Fibia fractures in Noverber 2020. I could walk with wheeler. Since then I can no longer stand or walk having to use a patient turner with my husband helping, to move around and transfer to wheelchair etc.
-
Last edited by Shona; 16 February 2022, 12:22. Reason: Oops got my years mixed up re diagnosis and fractures both 2020. -
Welcome along to a wonderful bunch of people. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Hi shona welcome to the forum. Hope you find lots of help and advice on here. XDiagnosed May 2021 bulbar onset als.Comment
-
Shona welcome to the forum. It's a great space with like minded people and some great supportπππ»xxInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
-
Shona Iβm sorry to hear about your diagnosis but welcome. You are should find lots of support here.Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
-
A warm welcome to the forum Shona - thank you for making that difficult 1st post, it's never easy.
Do you know which type of MND you have?Originally posted by Shona View Post
It sounds as if your tib-fib fracture healed well as you're back on your feet, albeit with a walker.
Stay safe - no more falls π
Love Ellie xx
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
Comment