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    Hi everyone, I was finally diagnosed late November 2021 after a year of tests for all sorts of other things. Then I was rushed into our local hospital with CO2 poisoning. Luckily ventilation brought me round within a day or so. At present I use a Rollator to get round but a wheel chair is not far away. I have to say though I am getting excellent support from the MNDA and a load of different NHS departments.

    #2
    alanbatcheldor A warm welcome to the forum family Alan, sorry you've had to join us.

    Is your MND respiratory onset ALS, or how did you end up with CO2 poisoning?

    Lovely to hear that you are well supported πŸ‘πŸ‘

    Love Ellie xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Welcome along. You found the best place for help, advice and support on the Web. Sorry to see you but Happy you're here. πŸ˜ŠπŸ‘πŸ˜πŸ˜€xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #4
        alanbatcheldor welcome to the forum. You'll see this is a great resource and a safe place to discuss anything & everything. Look forward to reading your postsπŸ‘πŸ»πŸ˜πŸ˜‰
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Welcome to the club no one wants to be in. You will find plenty of kindred spirits and good advice on here.

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            #6
            alanbatcheldor welcome to the forum Alan. Glad your getting good support. Hope your feeling better now re CO2 poisoning ☹️ Xx

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              #7
              alanbatcheldor Welcome to a wonderful group. Here you can shout, scream, laugh, cry and ask whatever questions you want. We have all done it and still do. Someone will always have advice to give.
              Richard

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                #8
                alanbatcheldor a warm welcome to the forum. It's a great source of information, support and humour.
                Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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                  #9
                  Welcome alanbatcheldor - I hope we can provide you with support, company and maybe the odd laugh.
                  Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

                  Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

                  Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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                    #10
                    alanbatcheldor hello and welcome to the best forum around. I’m sorry for the diagnosis that brought you here
                    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                      #11
                      After my beautiful Jan was diagnosed I remember when we first had the rollator and her reaction to her new found mobility It was like a lottery win We always tried to take the positives out of things and since joining the forum that’s what you get from these special people

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