Hi everyone, I was finally diagnosed late November 2021 after a year of tests for all sorts of other things. Then I was rushed into our local hospital with CO2 poisoning. Luckily ventilation brought me round within a day or so. At present I use a Rollator to get round but a wheel chair is not far away. I have to say though I am getting excellent support from the MNDA and a load of different NHS departments.
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alanbatcheldor A warm welcome to the forum family Alan, sorry you've had to join us.
Is your MND respiratory onset ALS, or how did you end up with CO2 poisoning?
Lovely to hear that you are well supported ππ
Love Ellie xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Welcome along. You found the best place for help, advice and support on the Web. Sorry to see you but Happy you're here. ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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alanbatcheldor welcome to the forum. You'll see this is a great resource and a safe place to discuss anything & everything. Look forward to reading your postsππ»ππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Welcome to the club no one wants to be in. You will find plenty of kindred spirits and good advice on here.Comment
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alanbatcheldor welcome to the forum Alan. Glad your getting good support. Hope your feeling better now re CO2 poisoning βΉοΈ XxComment
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alanbatcheldor Welcome to a wonderful group. Here you can shout, scream, laugh, cry and ask whatever questions you want. We have all done it and still do. Someone will always have advice to give.RichardComment
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alanbatcheldor a warm welcome to the forum. It's a great source of information, support and humour.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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Welcome alanbatcheldor - I hope we can provide you with support, company and maybe the odd laugh.
Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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alanbatcheldor hello and welcome to the best forum around. Iβm sorry for the diagnosis that brought you hereDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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After my beautiful Jan was diagnosed I remember when we first had the rollator and her reaction to her new found mobility It was like a lottery win We always tried to take the positives out of things and since joining the forum thatβs what you get from these special peopleComment
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