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Visit to neurologist

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  • Cat lady
    replied
    Thank you both xx

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  • JamesW
    replied
    Benign fasciculations are very common, please try not to overdo the stress as this will make them worse x

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  • EvelynMW
    replied
    I'd definitely go to a 2nd opinion. You won't feel right until you know. We will all be wishing the next result is, not MND

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  • Cat lady
    replied
    Thank you Peter Pan, I'm going to try to see things a different way or at least try it x

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  • PeterPan
    replied
    Cat lady Think I might look on the bright side and, as suggested, try to relax and take small steps. I also would be very wary of online ‘bad reviews’ of a neurologist- a professional person with masses of experience and qualifications. It’s not the same as rating service in a restaurant, and often the diagnosis of neurological conditions like MND has an element of art as well as science. If a neurologist categorically states that it’s not MND, that’s a strong professional opinion which should be heeded I would have thought.
    Last edited by PeterPan; 12 March 2022, 16:59.

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  • Cat lady
    replied
    Thank you Angie x

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  • Cat lady
    replied
    Thank you Ellie x

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  • Cat lady
    replied
    Thank you John x

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  • John D
    replied
    Definitely go for 2nd opinion at centre of excellence.

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  • Ellie
    replied
    Originally posted by Cat lady View Post
    I wondered if four months isn't really long enough to display atrophy?
    Perhaps it isn't, *but* your "thorough" neurological exam showed no concerns for muscle strength or reflex anomalies, which is great news. xx

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  • AngieCanuck
    replied
    Get the fasciculations on video. That’s what I did, and that was more clear for the neurologist. I just made a folder on my iPhone and deposited all the video of fasciculations from various parts of my body, and then showed them at my appointment.

    hang in there!

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  • Cat lady
    replied
    Thank you Shelly x

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  • shelly21
    replied
    Cat lady ask your gp to a referral to a centre of excellence for a 2nd opinion. Oxford and Sheffield for example.

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  • Cat lady
    replied
    I will try, thanks for replying Matthew x

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  • matthew55
    replied
    Just try to relax and take it in tiny steps. 😉😊😁😍xx

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