New here

[JPLeRouzic]

Hi all,
In my in-laws family there were two cases in last 15 years. The state of science on this subject became a kind of obsession for me, so I started a blog about neurodegenerative diseases and wrote an obscure book about it.
As English is not my native tongue, I am sorry for the strange sentences I may write. My writing style is not fun to read.
My intention is to read a lot and not participate.
I am a retired R&D engineer, so I am interested in technologies and applied sciences.
Jean-Pierre

[matthew55]

Welcome to the family. Sorry to see you but Happy you're here. 🙏👨👩👦🤗😘xx

[Lcfcno1fan]

Hi Jean-Pierre ☺️

[EvelynMW]

From the age of about 12, until the age of 62, a number of investigations, always negative, or wrong.......

2018, 1 finger on left hand curls up when being used
End 2018, visit the worst doctor in our surgery. Clear blood test. "maybe a tendon is being over stretched"?
Mid 2019, left hand is weaker, folding up of middle finger more frequent. Doc gets X-rays of hands. Small growths on top knuckles. I ask, "does this explain weakness?" No.
Does she, (better doctor) suggest cut her action? No.

A few months later, I ask for a referral. Eventually, August 2020, a diagnosis! How exciting!!!
No, not upset, feel relieved! I'm not a hypochondriac!!!!