Hello, I have been visiting this forum every day since my diagnosis in November, but was feeling too timid to introduce myself until now. I have already gained so much useful and practical information, as well as being encouraged by the positivity of the majority of members. It has really been a huge help, so thank you to everyone! I am trying to stay positive and am determined to keep doing everything I can, for as long as I can, while accepting there are going to be many changes and difficulties as I progress. So far my hands are mainly affected, with a little weakness in my legs and my voice gets very tired at times, usually after talking too much. I look forward to contributing a bit more to the forum from now on.
Announcement
Collapse
No announcement yet.
Yet another new forum member
Collapse
X
-
Jane A warm welcome to the forum Jane and thanks for taking the brave/daunting step of making your first post - I know it's not easy...
My onset site was also a hand. Looking forward to getting to know you.
Love Ellie xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 1
Comment
-
Jane welcome and glad you've introduced yourself....look forward to reading your postsπππ»Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
- Likes 1
Comment
-
Hiya Jane
Welcome to the gang.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
- Likes 2
Comment
-
Jane Well done and welcome! Acceptance and positivity are both really helpful in my experience although both are hard to sustain at timesDiagnosed October 2020 - See my blog at https://www.myneurodiary.com
- Likes 3
Comment
Comment