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    Yet another new forum member

    Hello, I have been visiting this forum every day since my diagnosis in November, but was feeling too timid to introduce myself until now. I have already gained so much useful and practical information, as well as being encouraged by the positivity of the majority of members. It has really been a huge help, so thank you to everyone! I am trying to stay positive and am determined to keep doing everything I can, for as long as I can, while accepting there are going to be many changes and difficulties as I progress. So far my hands are mainly affected, with a little weakness in my legs and my voice gets very tired at times, usually after talking too much. I look forward to contributing a bit more to the forum from now on.
    Diagnosed November 21, ALS limb onset, started in right hand June 2020

    #2
    Welcome Jane


    It is a great support for me as a carer for my husband. Sorry you have joined the club.

    Best wishes

    Donna
    Donna

    Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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      #3
      Jane A warm welcome to the forum Jane and thanks for taking the brave/daunting step of making your first post - I know it's not easy...

      My onset site was also a hand. Looking forward to getting to know you.

      Love Ellie xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Hi Jane and welcome. Glad you braved your first post. Xx
        Diagnosed May 2021 bulbar onset als.

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          #5
          Jane Hi and welcome. I am fairly new here too but, like you, have gained a lot of useful information from this forum. Sorry you have to be here. xx
          Bulbar onset diagnosed Nov 21. No speech but limbs ok so far.

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            #6
            Hi Jane welcome. Good to see you are keeping a positive attitude,it isn’t easy at times.

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              #7
              Hi Jane welcome to the forum
              Last edited by Tabbycat; 15 March 2022, 21:13. Reason: Pressed post by accident, before finishing post!
              Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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                #8
                Jane welcome and glad you've introduced yourself....look forward to reading your postsπŸ˜‰πŸ‘πŸ»
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  #9
                  Hiya Jane
                  Welcome to the gang.
                  Hi, I'm Eddie.
                  Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                  Still walking and talking, and wondering what the future will bring.

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                    #10
                    Warmest welcome Jane very happy you made this decision but very sorry you're here. We are always here for you. Stay Strong. πŸ’ͺπŸ˜ŠπŸ™β€οΈxx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Hi Jane, don't worry the first one is the hardest!

                      It sounds like you and I had a similar onset and I love your attitude, I think positivity really helps with this disease.

                      Rich

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                        #12
                        Hi Jane and a warm welcome to the forum.

                        Well done for making your first post which is the hardest. Im so sorry for your diagnosis but im glad you've found us as it's a good place for friendship and support.

                        Take Care,
                        Love Debbie x

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                          #13
                          Jane Well done and welcome! Acceptance and positivity are both really helpful in my experience although both are hard to sustain at times
                          Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                            #14
                            Hi Jane πŸ‘‹
                            Foxes Never Quit πŸ’™

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                              #15
                              Hi Jane you sound very similar with onset to my husband. Its a great group full of useful advice, humour(which we all really need) and friendship.

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