New Member

[EvelynMW]

Welcome Tony. My problems started in 1 of the fingers of my left hand, and i was, left handed. Now i am no handed! Can't write very well at all, but then again, never had neat handwriting! I never learned to write script at all.

The disease has only spread a little since 2018, and i find my mood hasn't been affected at all; albeit I get frustated sometimes!

Possibly, my positive attitude is due to the fact that i have been permanently on anti-depessants(?) for several years, due to multiple periods of depession.

Finally gave in and stayed on them for ever, so much nicer to be sane all of the time! My husband worries about me, not just more than i worry about myself, as i'm not worried at all! I may be one of the exceptions to many others on this forum, and i cannot say i truly know why.

[Deb]

Hi Tony . A warm welcome to the forum from me.

i am so sorry for your diagnosis but im glad youve found our friendly, supportive group.

Love Debbie x

[AngieCanuck]

Hiya Tony! I’m a newbie too, but everybody on the forum are such a comfort 🤗

[Tony]

Hi Shelly

its not easy is it. Acceptance is obviously the only option and, for me anyway, living in the present as much as I can. Enjoy what you can enjoy

[shelly21]

Hi Tony and a big welcome. I think the time not knowing is bliss. I am having better days now I'm facing the many alterations to our small home.
X

[Tabbycat]

Tony a warm welcome.

[Piglet]

Tony welcome Tony. I am a carer for my husband, he is in his 5th year since diagnosis. He started with weakness in hands and arms and now requires assistance with various personal care but he is still walking short distances which is great.
wishing you all a fulfilled life as much as possible xx

[PeterPan]

Tony welcome! I ignored my odd symptoms for ages. Best thing I ever did because I could live with those strange occurrences in true blissful ignorance. There’s plenty of enjoyment to have after diagnosis and as the disease progresses. There’s a lot of support and care in this forum- glad you’ve joined us

[TinyLady]

Hello Tony - welcome to the group. I also denied/ ignored my symptoms for a long time. They make themselves too obvious to be ignored now. But I can still sunbathe with a good book 😀

[LindaB]

Tony welcome to the forum & a great group of people....look forward to reading many more of your posts😉👍🏻

[WheelsOfSteel]

Hiya Tony. Wheel your chair up to the camp fire, ask a carer to pour you a drink and join the party.

[matthew55]

Welcome Tony

[JamesW]

Hi Tony 👋👋👋

[Tony]

Hi Aidan. Sounds very similar although mine started in my right arm. Difficulty throwing tennis ball up to serve then one day went to pick up a bag of shopping…well it progressed from there. As you say it’s difficult at times. All the best to you.

[keno]

Getting food to my mouth is very difficult for me too. Once there I'm OK.
Also, I can't walk far.
My home is no good for wheelchairs so I just have a folding push one for things like appointments.
Welcome, Tony.