Hello my name is Ben (43) and my Mum (65) has MND. We are now at the stage that my mum cannot do very much for herself. She has very limited mobility, almost to the point of no mobility. She can mouth words but it is very difficult for her to get the sound out. She still eats small meals often, as she struggles to breath if she eats to much. Me and my sister along with my mums partner look after her between work. She also has carers.
l suppose I’ve come on here to see if other people have the same feelings and emotions and how they have dealt with them.
I do my best to get her out, organising small trips with my family. I like to give her things to look forward to with quiz nights and race nights. It’s just not enough though. I can’t tell her everything’s going to be alright. It’s heartbreaking to see her deteriorate and see the pain and frustration in her. I can’t stop thinking about what she must be thinking. All the things she’s not going to see or do again, not seeing my kids grow up.
We try and stay positive and deal with whatever comes next. I try and comfort her, make her laugh and show her as much love as possible but it doesn’t help me from feeling so hopeless. This disease is so cruel.
Thanks for listening Ben x
l suppose I’ve come on here to see if other people have the same feelings and emotions and how they have dealt with them.
I do my best to get her out, organising small trips with my family. I like to give her things to look forward to with quiz nights and race nights. It’s just not enough though. I can’t tell her everything’s going to be alright. It’s heartbreaking to see her deteriorate and see the pain and frustration in her. I can’t stop thinking about what she must be thinking. All the things she’s not going to see or do again, not seeing my kids grow up.
We try and stay positive and deal with whatever comes next. I try and comfort her, make her laugh and show her as much love as possible but it doesn’t help me from feeling so hopeless. This disease is so cruel.
Thanks for listening Ben x
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