Hi, I'm awaiting referal at the moment, but I'm 99% sure I have MND/ALS.
Injured my knee a few weeks ago and then noticed why, my calf is wasted towards the lower portion. I have most of my strength probably about 80% but I have most of my body effected including my jaw (tiring chewing big meals) and some tightness in the back of my hands. Also have constant rippling cramp in the effected calf and the thigh above it started soon after. I wake up with twitching and cramping in my neck also.
I didn't realise that some while ago I was already a bit hoarse and struggling with swallowing when in bed laying down, really not sure which came first, the leg or the bulbar stuff. I thought I've been loosing my confidence and fluffing up words in the office, I can talk just fine and maybe it's anxiety but it does seem one hell of a coincidence.
I'm also loosing weight even though I'm trying to put it on, lost about 7kg in 6 weeks. Did anyone else have digestion issues long before other symptoms, as I have had for a long
Anybody know the details of Nottingham area based consultants and departments. I'm trying to get to see David Paling in Doncaster as I think I will be waiting a while on NHS!
This really is my worst nightmare, I'm sure likewise for most. I have a 5 and 7 year old, and when I just about have it together I think about telling them and not being there for themand it breaks me all over again.
Trying to make good memories and take one day at a time.
Still at work at the moment and trying to hide the symptoms until I have a diagnosis, it's hard. Ot spending every available minute with my wife and kids.
I guess my next steps are consultation and EmG etc to confirm.
Thank you all and my best wishes for your struggles.
Injured my knee a few weeks ago and then noticed why, my calf is wasted towards the lower portion. I have most of my strength probably about 80% but I have most of my body effected including my jaw (tiring chewing big meals) and some tightness in the back of my hands. Also have constant rippling cramp in the effected calf and the thigh above it started soon after. I wake up with twitching and cramping in my neck also.
I didn't realise that some while ago I was already a bit hoarse and struggling with swallowing when in bed laying down, really not sure which came first, the leg or the bulbar stuff. I thought I've been loosing my confidence and fluffing up words in the office, I can talk just fine and maybe it's anxiety but it does seem one hell of a coincidence.
I'm also loosing weight even though I'm trying to put it on, lost about 7kg in 6 weeks. Did anyone else have digestion issues long before other symptoms, as I have had for a long
Anybody know the details of Nottingham area based consultants and departments. I'm trying to get to see David Paling in Doncaster as I think I will be waiting a while on NHS!
This really is my worst nightmare, I'm sure likewise for most. I have a 5 and 7 year old, and when I just about have it together I think about telling them and not being there for themand it breaks me all over again.
Trying to make good memories and take one day at a time.
Still at work at the moment and trying to hide the symptoms until I have a diagnosis, it's hard. Ot spending every available minute with my wife and kids.
I guess my next steps are consultation and EmG etc to confirm.
Thank you all and my best wishes for your struggles.
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