Hello from Lancashire

[Ken]

My lovely wife was diagnosed MND last week. On here to listen, learn and educate ourselves on what lies ahead. We're both early 70's and have our first home visit from an MND nurse tomorrow.
This wasn't what we planned for the next few years but sometimes life comes at you pretty fast.......

[Lcfcno1fan]

Hello Ken, i’m really sorry to hear about your wife’s diagnosis 🥺

Everybody here is in the same boat and we will all help you in anyway that we can. Good luck with your visit tomorrow, I hope it goes well and that you have thought about some of the questions you might want to ask?

Sending you both hugs,
James x

[shelly21]

Ken A warm hello Ken. Sorry you are both having this journey but the forum is a great source of help. The next few months will be a whirlind of appointments. Lots of departments will be involved in your wife's care.

Maybe get a notebook and each visit ask for contact details and email etc. Also notebook comes in handy for any questions you may have xx

[matthew55]

Welcome Ken. We have all trodden the same path. Feel free to ask for directions. 😊🤗😜🙄xx

[DeeH]

Good luck with the MND nurse visit.

The MND association helplines are good for advice too.


Best of luck

[LindaB]

Ken warm welcome to you & your wife. This forum is a great place to drop into...look forward to reading your posts😉xx

[WheelsOfSteel]

Welcome Ken
If your MND Nurse is anything like mine, she is more of a "regional MND Coordinator" and will be your vital link to many other specialists. Very useful to know.

[denise]

Hi Ken

My husband is 71 this year. Hes been diagnosed 6 years now. Also has ftd.

At least you have found us and we can all share the highs and lows.

I'd also recommend you keep a diary and write as much down as possible.

Love and hugs to both
Denise xxx 💗

[Ellie]

Ken A warm forum welcome to you and to your lovely wife.

Love Ellie xx

[TinyLady]

Welcome Ken - I hope you find us all supportive and informative. Sending hugs to you and your wife xx

[Heather R]

Hi Ken, welcome to you and your wife to this forum. Hope you find it as helpful and informative as I have done. Heather (aged 75) xx

[Piglet]

Ken welcome to the forum. The first few months can be very daunting. Take each day as it comes. It’s my husband with MND and he’s in his fifth year. He’s still walking. You will learn to deal with things in time. So be kind to yourself. Wishing you and your wife good wishes. Xx

[Tabbycat]

Ken welcome to the forum, there's lots of support, useful advice and laughter here.

[Boiler68]

Hello Ken

Welcome to the forum to you and your wife. There’s a few of us on here from Lancashire. I’m from Bury myself. I’m on this journey with my husband who has ALS with bulbar manifestations. We’re in our 15th year with this and this forum has been a godsend. I’m one of the ones that doesn’t comment too much but have gained valuable knowledge of how to approach my husband’s issues from all the contributors here. I’m sure you will find your own way - it’s a great group and any issues you/your wife has, you’ll find an answer or solution from forumites new and old xxx

Best wishes.
Boiler xx

[Derbyram21]

Hi sorry to have to meet you this way . You will find a mass of information and help here . I have!! Love and Light to you both ❤️ x