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    MND related problems

    Hi everyone
    i was diagnosed in January. It all started about a year go when a weak left foot eventually turned to foot drop after my very large dog pulled me over…this wasn’t like a woopsie moment, it was more of a car crash moment that left me with numb left side for two days.
    I could actually walk if it wasn’t for two things.
    1. my good right leg has compensated for so long that it feels like I have extreme muscle strain and it’s this that makes it difficult for me to walk.
    My left leg with the foot drop gives me hardly any problems, except…
    2. I get a really sharp pin prick pain underneath my big toe on the left foot when I wear any type of shoe, if I don’t take the shoe off the pain spreads to all of the underneath of my toe..anyone have his too.
    Also what tests etc did you have that gave a final diagnosis of MND
    thanks for reading x

    #2
    A warm welcome to the forum Wendizzle50

    Have you access to a Physiotherapist either through your MND Clinic/Neurologist or in the community who could assess your walking ability, gait and muscle tone/pain, as well as your foot pain? Or perhaps refer you on to a Podiatrist for the foot and shoe issue.

    Originally posted by Wendizzle50 View Post
    Also what tests etc did you have that gave a final diagnosis of MND.
    That's not a question for which there is the one common answer because it can depend on the symptoms , and their seveone presents with.

    As so many other conditions need to be ruled out before an MND is ruled in, the 'usual' tests can include bloods, MRI, CT, EMG, NCS, lumbar puncture, swallow assessment *but*, as I said, it can depend on one's presenting symptoms, as well as clinical exam, Neurologist's experience and availability of tests in a given hospital. Do you ask for any specific reason?

    Love Ellie xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Wendizzle50 welcome to the forum. I look forward to reading your posts😉😘
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        #4
        Welcome to the family that has so much support, love and friendship 👨‍👩‍👦❤️😘xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Wendizzle50 welcome to the forum. Really hope you get some relief to help with your foot problems. As Ellie commented ask the professionals for referral to physio. Good luck.xx

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            #6
            Ellie
            i asked about the different tests to diagnose MND, because my foot drop started shortly after having a bit of a traumatic accident involving my very large dog pulling me over…it’s sounds trivia but I travelled about 3ft through the air and hit the ground with such force my left side was totally numb for 2 days. I wasn’t even aware it happened until I hit the floor, I thought I’d been hit by a car. It was so fast my pony tail came out. Anyway it took 4 months to get an MRI scan on my back, another 2 months for a brain scan, both showing nothing. I then had An EMG, followed by NCS. It was on the 2rd NCS that I was diagnosed. During the year it took to get a diagnosis no one was listening about the accident with my dog. It wasn’t even written in my notes.
            A couple of evenings ago I tripped, flew down the hallway and collided with the door frame, I arched my back so I didn’t hit my face and my back did a sequence of loud cracks around my pelvis area, I ended up a heap on the floor..skip to the next day .. something has definitely shifted for the better and I now can wear the ankle footbrace with out really doing it up..I put it in place and hook it up but don’t need to use the Velcro straps to get my foot to raise, my legs are no longer heavy or aching and the pain in my big toe has gone. 🤷‍♀️
            so I’m thinking did this miss something..plus no one ever examined my leg or pelvis. I definitely have nerve damage but all other issues besides foot drop have gone.
            sorry for the long reply

            Comment


              #7

              Originally posted by Wendizzle50 View Post
              i asked about the different tests to diagnose MND, because my foot drop started shortly after having a bit of a traumatic accident involving my very large dog pulling me over…

              The thing about muscles weakening due to ALS is that, in the background and unbeknown to the person, motor neurons have been degenerating for a while. Could it be that, in injuring other muscles which may have been compensating for already weakened muscles, your foot drop was laid bare and showed up earlier than had you not fallen? Perhaps that was the case, yes, but muscle failure takes a while to happen.

              Perhaps also it was the case that your fall was more ‘dramatic’ because ALS affects our balance and, compared to how you would have physically been knocked off your feet, fallen and landed pre-ALS, could be notably different to how you fell as above.


              Originally posted by Wendizzle50 View Post
              It was on the 2rd NCS that I was diagnosed.
              Can I take it that it was after the 2nd EMG, rather than NCS, your diagnosis was made, or did you only have the one EMG and the 2nd NCS was confirming you were clear of nerve damage? xx



              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                See my next comment…lol
                You do not have permission to view this gallery.
                This gallery has 1 photos.
                Last edited by Wendizzle50; 14 April 2022, 16:33.

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                  #9
                  This is a sarplanniac shepherd..the same as my boy..he’s the reason my fall was so dramatic not my balance, as it was fine prior to this incident
                  they are capable of killing wolves in numbers If life stock is threatened. My Doggo weighs 76lbs

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