My husband’s diagnosis was in January 2022, having been warned of the likelihood in mid December. This came after several months of various hospital appointments in the orthopaedic department and then eventually the neurology department. To say it was a shock is an understatement, MND wasn’t on our radar at all but we are coming to terms with it as best we can.
He’s already done voice banking using the “I will always be me” method. It was very straightforward and the funding from MNDA was authorised the same day (thank you!). It was very emotional though, listening to the people reading the story and hearing him read it.
In the meantime that old chestnut “one day at a time” is the mantra we’re trying to embrace. It feels a bit like the calm before the storm at the moment but this forum will, I’m sure, prove to be invaluable as time goes on.
Thank you for reading
L x
He’s already done voice banking using the “I will always be me” method. It was very straightforward and the funding from MNDA was authorised the same day (thank you!). It was very emotional though, listening to the people reading the story and hearing him read it.
In the meantime that old chestnut “one day at a time” is the mantra we’re trying to embrace. It feels a bit like the calm before the storm at the moment but this forum will, I’m sure, prove to be invaluable as time goes on.
Thank you for reading
L x
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