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    #1

    Hello

    Hi, my name is George I have progressive spinal atrophy since 1986 when I was first diagnosed I'm now 73 and have now lost the use of my left arm and hand and very limited use in the right hand and arm and have to use a wheelchair to get around , I do know how lucky I am compared to a lot of others .
    Any way I hope to be able to add something to the community
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    • Likes 4
    #2
    A warm welcome to the forum George.

    Originally posted by george1948 View Post
    I have progressive spinal atrophy
    Which type of Spinal Muscular Atrophy do you have?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
    ​
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      #3
      Yes, welcome to the forum too.x
      • Likes 1

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        #4
        Hi George hope you can add lots of tips etc. Welcome πŸ™ 😊
        Diagnosed May 2021 bulbar onset als.
        • Likes 1

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          #5
          Hi George
          lovely to meet you.
          Xxx
          when i can think of something profound i will update this.
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            #6
            Welcome to the family that really cares George. Lovely to meet you just sad you are here πŸ€”πŸ˜‡πŸ˜πŸ˜„xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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              #7
              Welcome george1948 - looking forward to hearing more from you x
              Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

              Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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                #8
                Welcome george1948
                Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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                  #9
                  Hi George πŸ‘‹πŸ‘‹πŸ‘‹
                  Foxes Never Quit πŸ’™

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