My PEG took 4 days in hospital to fit. The hospital said they needed a day to ensure my stomach was empty and a couple of days post-op to be sure there had been no "complications" arising from the operation, or issues with subsequent use. The actual op took less than 30 min!
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Hello Peter and welcome to the forum,
It sounds like the hospital was very thorough with your care, which is good.
I hope things are going well with using your PEG.
Best wishes
KayleighComment
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Thanks. My PEG was a "better too soon than too late" decision. So although it is religiously flushed and rotated, I'm still consuming the feeds through a straw! This isn't a gourmet experience, but it's a lot quicker, and can be done anywhere without drawing attention!Originally posted by Kayleigh View PostComment
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Hi Peter. Welcome LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Hi Peter and a warm welcome to the Forum nobody wants to join...
Good to hear your feeding tube is in place for if or when you need it. Do you eat any food or just take the sip feeds?
I use a pump for my feed and have been in various places with the pump quietly feeding me and nobody is any the wiser
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I continue to eat normal foods I can still manage with my weak cough and swallow, but I have nearly useless arms and hands, so I'm experimenting with the spoon-feeder robot. This allows me to eat socially while attracting only mild ridicule, rather than pity!Originally posted by Ellie View PostHi Peter and a warm welcome to the Forum nobody wants to join...
Good to hear your feeding tube is in place for if or when you need it. Do you eat any food or just take the sip feeds?
I use a pump for my feed and have been in various places with the pump quietly feeding me and nobody is any the wiser
Love Ellie.
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Charge your viewing audience for the entertainment - don't miss out on making a few quid for the MND FundOriginally posted by PeterW View Post... I'm experimenting with the spoon-feeder robot. This allows me to eat socially while attracting only mild ridicule, rather than pity!
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hi Peter and welcome to the forum but sorry that you need to be here.
It's good to hear that your PEG fitting went well.
I am waiting for a date for my PEG to be fitted. There is a provisional date if it's to be done at Salford but there is some doubt about where it will happen because of my test results. It could end up being done at Wythenshawe. I have my fingers crossed for Salford. However, whichever hospital it is fitted by, I will be an in-patient from Monday to Friday.Dina
Trying to keep positive, but not always managing.Comment
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Hi PeterW,
How are you getting on with the robotic feeder and what make is it?
Best wishes, TerryTB once said that "The forum is still the best source for friendship and information."
It will only remain so if new people post and keep us updated on things that work or don't work and tips.
Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.Comment
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