Hi , from Mike in Brighton (well, Hove, actually)

[Michael Nicholas]

Hi. I was diagnosed with MND in June 2021, but I think I had symptoms for several prior years.
I am currently receiving care at home.
Today, my left side from toes to face is badly affected by the disease. My right side is much better, but some symptoms are perhaps emerging in my right leg and foot. I imagine the disease could quickly progress. so I have been trying to tidy up financial matters, and even prepare my funeral.

[Stonehengeman]

Sorry to hear that. I hope that you are getting the necessary care. It comes as a shock when you are first told, I have Progressive Bulbar Palsy which affects my swallow and I cannot speak. Other than that I am fortunate that the MND has not progressed, so far, to my arms or legs.
I was diagnosed in Jan 2018 and have carried on as best I can and still do the gardening and play Bridge. I hope you can keep going. Like you I have tidied up my finances and have told my children to get organised for my funeral.

[LindaB]

Michael Nicholas welcome to the forum. I think most of us make those preparations so that we can ‘forget’ about them so to speak.
Look forward to reading more of your posts.
Take care😉

[Ellie]

Michael Nicholas A warm welcome to the forum Michael from Hove 😉 Thank you for posting.

Are your symptoms mainly in your limbs - no issues talking, swallowing or breathing?

Love Ellie xx

[TinyLady]

Michael Nicholas - welcome to the forum. I am mostly left sided issues too x

[JamesW]

Hello Michael 👋

[denise]

Hi Michael

Nice to meet you

💕😘

[Michael Nicholas]

Thank you all for the kind welcome.

I have swallowing and speaking difficulty, too. The left side of my face, tongue and throat are affected.

I have an electric wheelchair, but retain strength down my right side. I'm half the person I used to be.

[Derbyram21]

Hi Michael and welcome to a forum you or any of never expected to be on. Really helpful and friendly people loads of great information . Love and light

[matthew55]

A warm welcome from me

[Tony]

Hi Michael and welcome. Carry on enjoying as much as you can as long as you can 👍

[Petersnd janice]

Good luck and blessings on your journey mate 👍

[Chelle73]

Hello from Peacehaven (not far from you) welcome to the forum we all wish we didn’t have to be in

[Tabbycat]

Michael Nicholas welcome to the forum it's a great source of information, support and humour.

[WheelsOfSteel]

Hiya Mike. Sounds like you are from the posh bit
I was once in a play that had the line "Brighton's plush silk-stocking district of Hove".
Like you, I am worried about progression and I am making what arrangements I can while still able.
In the meantime - welcome to the party. Hope to hear more from you.