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Hi I am Frank

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    Hi I am Frank

    I support my Nephew who has PLS and his mum my Sister he has been living in a care home since 2019

    #2
    Chi Man Frank hi there. You will find this forum very helpful

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      #3
      Hi Frank 👋
      Foxes Never Quit 💙

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        #4
        Chi Man Frank A warm welcome to the forum Frank.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #5
          Welcome Frank!! I hope you find us a friendly and supportive bunch x
          Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

          Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

          Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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            #6
            Welcome Frank. Hope you find the forum useful. I’m sure you will. Take care of yourself too.xx

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              #7
              Welcome to the forum Frank.
              I am sure you will find the support and advice you get here useful.
              Diagnosed 3rd November 2021 Bulbar Onset

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                #8
                Welcome to the forum Frank

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                  #9
                  Hello Frank. I have probable PLS (for now…). Welcome to the forum!

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                    #10
                    Hi Frank
                    welcome xx
                    when i can think of something profound i will update this.

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                      #11
                      Welcome Frank!
                      Diagnosed October 2020 - See my blog at https://www.myneurodiary.com

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                        #12
                        Chi Man Frank Better late than never….welcome to the forum😉🤗
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                          #13
                          Yes welcome Frank
                          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                            #14
                            Sorry for the delay and welcome to the forum Frank. I am same as Angie in that I am diagnosed probable pls at the moment. X

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                              #15
                              Thank you all for your kind comments

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