I support my Nephew who has PLS and his mum my Sister he has been living in a care home since 2019
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Chi Man Frank hi there. You will find this forum very helpful -
Hi Frank 👋Foxes Never Quit 💙Comment
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Chi Man Frank A warm welcome to the forum Frank.​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Welcome Frank!! I hope you find us a friendly and supportive bunch xDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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Welcome Frank. Hope you find the forum useful. I’m sure you will. Take care of yourself too.xxComment
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Welcome to the forum Frank.
I am sure you will find the support and advice you get here useful.Diagnosed 3rd November 2021 Bulbar OnsetComment
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Welcome to the forum FrankComment
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Hello Frank. I have probable PLS (for now…). Welcome to the forum!Comment
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Hi Frank
welcome xxwhen i can think of something profound i will update this.Comment
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Chi Man Frank Better late than never….welcome to the forum😉🤗Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​Comment
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Yes welcome FrankDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Sorry for the delay and welcome to the forum Frank. I am same as Angie in that I am diagnosed probable pls at the moment. XComment
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Thank you all for your kind commentsComment
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