New Member

[leaverinpeace]

My husband diagnosed bulbar onset in Nov 2020. Initial symptoms slurred speech, now speech almost
totally faded and saliva / swallowing issues now. No
loss of limb function whatsoever. Going for assessment tomorrow for botox for
saliva - has anyone had this treatment and how
was it?
Has anyone tried NAD+ infusions?

[LindaB]

Welcome to the forum. Sorry I can't add anything useful to the botox question.

Hope you'll keep posting now you've joined us😉😘

[Ellie]

leaverinpeace A warm welcome to the forum family.

As with medications and radiotherapy, some people find Botox great for reducing saliva production, others are left disappointed even though there is a standard protocol - people respond differently to treatments and secretion management can be rather challenging.

I presume you have tried some meds, without much luck, hence the Botox? Really hope it works for you 🤞🤞

Re NAD+: have you identified somewhere where you can get the infusions/injections? Plus, given that you've researched NAD+, I wonder if you have thought about NAD+ precursors instead. I have not taken any of these supplements, I was always too far from onset when I heard about these things....

Good luck tomorrow.

Love Ellie.