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    My husband diagnosed bulbar onset in Nov 2020. Initial symptoms slurred speech, now speech almost
    totally faded and saliva / swallowing issues now. No
    loss of limb function whatsoever. Going for assessment tomorrow for botox for
    saliva - has anyone had this treatment and how
    was it?
    Has anyone tried NAD+ infusions?

    Welcome to the forum. Sorry I can't add anything useful to the botox question.

    Hope you'll keep posting now you've joined usπŸ˜‰πŸ˜˜
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​


      leaverinpeace A warm welcome to the forum family.

      As with medications and radiotherapy, some people find Botox great for reducing saliva production, others are left disappointed even though there is a standard protocol - people respond differently to treatments and secretion management can be rather challenging.

      I presume you have tried some meds, without much luck, hence the Botox? Really hope it works for you 🀞🀞

      Re NAD+: have you identified somewhere where you can get the infusions/injections? Plus, given that you've researched NAD+, I wonder if you have thought about NAD+ precursors instead. I have not taken any of these supplements, I was always too far from onset when I heard about these things....

      Good luck tomorrow.

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.