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MND confirmed

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    MND confirmed

    Hi, I'm not sure if this is the right place to post. My father had a fall a couple of months ago, they had to bring him to hospital. He's being tube-fed since then. Initially, the doctors thought he had Parkinson, but now it's confirmed that it is ALS (he lives in the US). I don't know what to expect and am scared for him.

    Hi Lara,

    Yes this is a good place to post and I’m really sorry to hear about your dad 🥺

    There are plenty of discussions here about life with MND and you are free to ask your own questions too. Hopefully we can all be of help to you.

    Take care, James x
    Foxes Never Quit 💙


      I’m sorry to hear about your father. This is a great place for support, but the experience your father will have in the US is different than most here. There is a US based ALS forum that you might want to check out in addition to this forum. I hope you find the answers you need regarding your father’s diagnosis.
      Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.


        Lara A warm welcome to the forum Lara, sorry to hear of your dad's diagnosis.

        Hard as it would be if he were living near you, it must be 100x harder when your dad is thousands of miles away 😟

        Is he at home now with support? Is his speech OK for video calls?

        Please feel free to ask us questions or just hang out here and we will support you as much as we can.

        Sending you a big hug tonight 🤗🤗

        Love Ellie xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


          Lara warm hello and sorry about your fathers diagnosis. I hope we can offer support etc when you need it x
          Diagnosed May 2021 bulbar onset als.


            Lara welcome to the forum & sorry to hear your dad's diagnosis. You'll see lots of advice & support here...😘
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​


              Hi Lara I'm really sorry to hear about your Dad. I'm sure it's a massive shock right now.
              I'm supporting my Dad who was diagnosed a year ago. My brother lives in America.
              Its hard to know what to expect as it affects everyone differently however you'll find a lot of information and support here on the forum.


                Lara you’re very welcome here to ask questions and share experiences.. Are you in the US too? Here in the UK we get (are meant to get!) a huge amount of support, care, equipment and benefits free of charge from the National Heath Service and people talk about this in the forum. Obviously it’s different in the US and the US ALS forum that Maria mentioned is good too.
                Diagnosed October 2020 - See my blog at


                  A warm welcome to the forum Lara

                  I am so sorry for your father's diagnosis. It must be even harder when he is so far away.

                  There's friendship and support on here.

                  Take care of yourself
                  Love Debbie x