I agree AngieCanuck, a separate thread would be good as those who want to respond can and those that don't wish to see the posts or are affected by them don't need to see the posts of every new symptom. However, the advice remains that no one on here can diagnose or confirm which symptoms are likely MND as everyone's symptoms and progress are individual and unique as has been said repeatedly. The best advice that can be given is to see your medical practitioner (GP / Neurologist etc) and seek support for anxiety or stress in the meantime. Also contact the MND connect line to speak to someone.
In my experience this forum has been nothing but welcoming and informative, a place for shared experience from celebrating those little wins to suggestions around equipment and even dealing with the final stages of what is a horrible illness. It is a online community valued by many and terms such as bullying are very strong terms to be used. In my opinion I haven't seen anything that constitutes bullying. I welcome honest and direct discussions (regardless of grammar or spelling) and appreciate the experience shared from longstanding members, recognising the huge effort this may require and the sense of humour that still shines through despite it all.
In my experience this forum has been nothing but welcoming and informative, a place for shared experience from celebrating those little wins to suggestions around equipment and even dealing with the final stages of what is a horrible illness. It is a online community valued by many and terms such as bullying are very strong terms to be used. In my opinion I haven't seen anything that constitutes bullying. I welcome honest and direct discussions (regardless of grammar or spelling) and appreciate the experience shared from longstanding members, recognising the huge effort this may require and the sense of humour that still shines through despite it all.
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