I'm back

[Olivia H]

Keep positive, someone is always here x

[Heather R]

shelly21 nice to hear from you again, so glad the hospice was some help. Go at your speed with getting used to NIV, and hope you find it useful and comforting as I do x

[TinyLady]

Good to see you back, although I've not been here much either xx

[JamesW]

Welcome back Shelly 😊😊😊

[Claireflo]

Welcome back shelly21, it's good to hear some positive news about the support from the hospice and the frame. I hope it goes well with the NIV and you find it useful.
Claire

[Ellie]

Welcome back lovely lady 🤗😘

I have had great support from the hospice. They are now going to be our go between with some of the departments.

Oh Shelly, that is music to my ears 👍👍

Re NIV: a comfortable mask is very important so, if you don't get on well with the first mask you're given, there are other types available. xx

[GillB]

Welcome back shelly21

We missed you and your partner is right about how this forum helps.

Glad the hospice is helping and getting you the help you need. Sounds like your OT isn't that clued up. It is really pot luck as some are great. x

[Maria C]

Glad to see you back Shelly.

Your comment “If only my ot or physio would've suggested it” really resonated with me. I’ve found more useful suggestions here than I’ve ever gotten from the so called professionals I’m involved with. This is a great group of people.

[Karen62]

Lovely to see you back shelly21 xx

[PeterPan]

Welcome back Shelly. I found NIV very hard to get used to but now the gentle, rhythmic breathing is a great comfort and now sends me to sleep (night and day!)

[denise]

Glad you're back shelly.

Xxx

[Hope]

Welcome back shelly21! It is so nice to see you back here! So pleased things seem to be improving for you and good luck with the NIV. x

[shelly21]

Hi everyone. My partner encouraged me back on the forum because he says that if it wasn't for the forum members we would be lost.

I have had great support from the hospice. They are now going to be our go between with some of the departments.

The anti anxiety meds are so helpful. The good news is I saw a Facebook video of a man with mnd using a frame with wheels on front. My friend got me one and I'm out of my wheelchair in the house and using my frame. If only my ot or physio would've suggested it.

I've got a to start niv as nighttime sats falling. I was upset but I also know what good it can bring.

I will take the tips from you guys re breaking niv in gently.

X