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A big thank you to MNDA

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    A big thank you to MNDA

    Hi all,

    I know you already know how good the MNDA is, but today I got my first experience of what the association can do for me.

    In my welcome post a couple of weeks ago I outlined my plight with trying to get a diagnosis and the seeming lack of support from the NHS.

    I sent an e-mail to MNDA yesterday asking for help and within 1 hour of receiving a reply I have already had a very lengthy conversation with Caroline Davis at Queen Elizabeth Hospital MND team which is part of the NHS and I will be getting an appointment with a specialist hopefully as soon as next week.


    Les Cotterill

    That's good to hear Les.

    I'm sure Caroline explained that there are several different disciplines in a specialist MND Clinic and you may see quite a lot of different people on your first and subsequent visits, so they can be pretty long appointments - be warned 😏

    It's a good idea to bring a list of questions with you and to take note of answers, information and a who's who of clinic personnel. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user


      Hi Ellie,

      Thank you for the information. Fortunately, my wife Angie will be with and will take notes.