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    My name is Maz

    Hi Maz, welcome to our forums. Whether it's you who have had an MND diagnosis, or a loved one you have come to a smashing place for support. I hope that you will soon feel able to share something about yourself. Ask whatever you want. Somebody will be able to answer or at least point you in the right direction of an answer, a tip or where to get something or other. Take care, Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.


      Hi Lynne, I was diagnosed with als in November & have just found the courage to join this forum


        That's good about your courage to join Maz. It does take a few months after the horrid diagnosis for your head to get around it. If you read other people's replies in the introduce yourself forum and other forums you can see how other people feel about diagnosis and lots of other helpful posts. Love Lynne
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.


          Welcome Maz!

          Well done and thank you for taking that brave step of saying Hiya.

          Now save all your courage for yourself. It’s not needed here. This is place to talk, to ask, to read, to rant, to cry and to let this incredible forum family help take care of you. There is more knowledge and compassion here than one could ever imagine.

          And lots of hugs too….

          Diagnosed April 2017


            Hi Maz,

            I'm so sorry you've had to join us but I want to give you a warm welcome.

            It's hard to take the plunge and make your first post - it makes the diagnosis so real and permanent - so congrats on having the courage to do so.

            Take care.

            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user


              Hi Maz,
              Welcome to this very friendly forum.


                Hi Maz,

                Welcome to this lovely forum - there is so much knowledge, empathy and support, all of which flow freely - but I'm sorry that you have been diagnosed.

                Like you, it took me a while to join the forum. I was diagnosed with ALS in November 2018 and I joined this forum at the end of March. In the period between, I kept my head very firmly buried in the sand and wouldn't let anyone tell me anything about MND. I feel differently now, but I pick and choose what I want to read about.

                Feel free to ask any questions, or to comment on any of the threads. No-one will bite you - the dentures belonging to the ones who bite have all been stolen, so you're completely safe.

                Sending lots of electronic snuggly hugs.

                Trying to keep positive, but not always managing.


                  Hiya to you Maz,

                  I am very sorry about your diagnosis but I would like to warmly welcome you to the forum. It's the right place for emotional support, practical advice and the occasional rant or meltdown. There is humour too !

                  Well done for your first post. We are all different but I was like Dina, with my head in the sand for a while and I didn't want MND advice at first. I guess we need time to come to terms with things first but you can post as little or as often as you like and everyone will understand.

                  Take care of yourself,
                  Love Debbie x


                    welcome Maz


                      Hello Maz,

                      Sorry to hear of your diagnosis but you are very welcome here. We try to be as friendly and supportive as possible.

                      Understandably there is a lot to come to terms with. You are very welcome to share your thoughts and feelings with us and please don't hesitate to ask for advice if you would like to.

                      Kayleigh x


                        Hi Maz and welcome.

                        You have already met some of our forum family and no doubt if you have any questions or issues then someone will answer you.

                        Best wishes,
                        I’m going to do this even if it kills me!