Hello everyone.
I'd like to introduce myself. I'm Steven, 37, from Cornwall. I'm a wedding photographer and I live with my amazing girlfriend, Lauren.
Back in February, I was playing a game on my mobile phone and noticed my thumb was cramping up and not working properly the more I used it. It was a very thumb intensive game. Thinking nothing of it, I carried on the next couple of weeks assuming it was carpel tunnel. Off I went to the doctors and she told me it definitely wasn't that. I have absolutely no issue pinching or grabbing, but extremely weak in extending my thumb and index finger. She requested a nerve conduction study.
Weeks carried on and I noticed at training, my left arm is noticable weaker than my right. I then also noticed muscle twitching. This led me to google weakness and muscle twitching and obviously alarmbells rang.
I had my nerve conduction study but the lady told me I needed an EMG as I explained my symptoms. She referred me to a consultant neurologist who did a physical examination and told me that although my symptoms didn't appear typical of MND, that I need to keep an open mind.
I paid privately for an EMG and was seen my another consultant. He told me it sounds like a trapped nerve in my left arm. I had the EMG but no results there and then. Told me he would email his initial findings to my consultant. I rang him the next day and he told me that there are definitely issues with my left arm but also 'subtle changes' elsewhere, which he didn't elaborate on.
I decided to pay to see a neuro physiotherapist today to see if it could be a trapped nerve and what I should do. She assured me it wasn't a trapped nerve.
My symptoms haven't got worse since February as far as I'm aware but at this point I can no longer mentally function or cope. I can't eat or sleep or leave my bed.
I don't understand what else it could be at this stage. All my bloods came back fine. I'm waiting for an MRI and I will have a second EMG in October time.
What am I supposed to do? How does one cope with the impending diagnosis of MND. I have tried calling local mental health lines but they can only listen. I am already on the highest dose of antidepressants. I have some Valium to help me make it to work. I have a holiday with my girlfriend in Portugal on Sunday but I don't feel I can go due to extreme anxiety.
Everything seems to all be far too coincidental for it to not me MND.
How am I supposed to carry on as normal? Sorry for the rant but I am more scared than I could possibly imagine.
Thankyou x
I'd like to introduce myself. I'm Steven, 37, from Cornwall. I'm a wedding photographer and I live with my amazing girlfriend, Lauren.
Back in February, I was playing a game on my mobile phone and noticed my thumb was cramping up and not working properly the more I used it. It was a very thumb intensive game. Thinking nothing of it, I carried on the next couple of weeks assuming it was carpel tunnel. Off I went to the doctors and she told me it definitely wasn't that. I have absolutely no issue pinching or grabbing, but extremely weak in extending my thumb and index finger. She requested a nerve conduction study.
Weeks carried on and I noticed at training, my left arm is noticable weaker than my right. I then also noticed muscle twitching. This led me to google weakness and muscle twitching and obviously alarmbells rang.
I had my nerve conduction study but the lady told me I needed an EMG as I explained my symptoms. She referred me to a consultant neurologist who did a physical examination and told me that although my symptoms didn't appear typical of MND, that I need to keep an open mind.
I paid privately for an EMG and was seen my another consultant. He told me it sounds like a trapped nerve in my left arm. I had the EMG but no results there and then. Told me he would email his initial findings to my consultant. I rang him the next day and he told me that there are definitely issues with my left arm but also 'subtle changes' elsewhere, which he didn't elaborate on.
I decided to pay to see a neuro physiotherapist today to see if it could be a trapped nerve and what I should do. She assured me it wasn't a trapped nerve.
My symptoms haven't got worse since February as far as I'm aware but at this point I can no longer mentally function or cope. I can't eat or sleep or leave my bed.
I don't understand what else it could be at this stage. All my bloods came back fine. I'm waiting for an MRI and I will have a second EMG in October time.
What am I supposed to do? How does one cope with the impending diagnosis of MND. I have tried calling local mental health lines but they can only listen. I am already on the highest dose of antidepressants. I have some Valium to help me make it to work. I have a holiday with my girlfriend in Portugal on Sunday but I don't feel I can go due to extreme anxiety.
Everything seems to all be far too coincidental for it to not me MND.
How am I supposed to carry on as normal? Sorry for the rant but I am more scared than I could possibly imagine.
Thankyou x
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