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    #16
    Hi Gloslad,

    I can understand her worries. Just hope that it is something else.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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      #17
      Hi Glos,

      Yes unfortunately PLS is a possibility, but not the only one.

      Have you a date for Talbot yet?

      Best wishes.

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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        #18
        no not yet, just waiting for the letter to arrive.

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          #19
          me too Terry

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            #20
            Don’t be scared

            Hi everyone
            Dont be scared
            Just be strong , the more you think for it , it will get worse.
            Happiness is the best treatment
            No matter how much pain you get , just smile and say to yourself yes i can handle it .
            Anyone who is not able to be happy by being positive by yourself , just try spending time with kids . I am sure they will make you laugh .
            Whatever you are left with just live happily ❤️
            Its 4 years to me diagnosed with MND
            i was depressed for a lot of time but then i decided to live happily .
            Today my body has become so weak but still i smile and say i am fine.
            Dont count yourself as ill.
            You are fine just living life differently.

            I would be really happy if anyone wanna talk to me 😊
            Text me

            Love from
            Madhur

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              #21
              Hi Ellie, off to Prof Tabot today so hopefully I might have news later

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                #22
                All the best Glos.

                Hope you get even an inkling as to what's going on with you.

                One thing to remember is that you're going to a very good & experienced Neurologist, which is great.

                Don't feel foolish in taking notes during the appt - often what was discussed is forgotten as soon as you walk out the door, if you're like me anyway!!

                And if you've questions, write them down so you don't forget them.

                Best wishes.

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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                  #23
                  All the best for your appointment, Gloslad.
                  Dina

                  Trying to keep positive, but not always managing.

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                    #24
                    thanks, my wife has a million questions for him

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                      #25
                      thank you

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                        #26
                        Good Luck today Gloslad,

                        I really hope you get some answers to your questions. These appointments are so stressful so as Ellie says, dont worry about having your questions written down.

                        Love Debbie x

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                          #27
                          All fingers crossed for you today.

                          Whatever happens, you're talking to the right guy.

                          Doug

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                            #28
                            Dear Gloslad,

                            I hope everything went well at your appointment this afternoon. Hopefully the neurologist had some answers for you and will be helpful in quickly finding a diagnosis for your symptoms, if one hasn't been found yet.

                            Best wishes to you and your wife,

                            Kayleigh

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                              #29
                              Saw Prof Turner, a lovely guy, he has diagnosed PLS which ,although not unexpected, to hear the words was a hammer blow. Saw a nurse afterwards who was also lovely, but to be honest was all a bit of a blur. Back to see him again 3 months time.

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                                #30
                                Oh Glos, I am so sorry and can understand why it's all a blur for you and probably for your wife too.

                                It'll take a while for it to sink in and the fog to clear, so I won't overwhelm you by saying anything else for now except that we're here to help and support you both.

                                Big hug.

                                Love Ellie.
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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