Good evening
Would anyone be kind enough to offer a listening ear and a bit of advice concerning my current symptoms.
I'm in my late 40s , never smoked , and don't really drink , 12 months ago I started to get all over muscle twitching.
A month later I had a thorough clinical exam with a professor in neurology all was normal , I then had a extensive emg July 2021 at a university hospital , on a few fasiculations were found in calfs , neurophysiologist said no evidence of mnd , possible bfs.
At the same time I started to get a consistent 24/7 soury mettalic taste in mouth , gp said possible silent reflux.thus taste has worsened to the point my lips are sticky and it causes me to lisp my words , ppi was prescribed , these have not worked , I had a private acid reflux test carried out , no reflux.
November 2021 second emg carried out again at the same hospital, fasiculations found in calfs no other findings,no evidence of mnd .
December 2021 2nd clinical work up with a neuro muscular who is also a mnd consultant , he just found slightly brisk reflexes and thankfully no evidence of mnd
February 2022 , private emg at private hospital , the consultant teaches emg to medical students, fasiculations found in calf muscles and in tongue , I questioned it and he said no evidence of mnd , I felt he rushed it and was no where as thorough as the previous two carried out at hospital.
The twitching is constant and I can induce them by tapping sometimes,they stop when I'm exercising.i can walk on my tose and heels and do normal things I do not feel I have any weakness, I've got to have a hip replacement which I've known about for last 3 years , this is due to years spent doing ultra marathons and triathlon, the taste in mouth is chronic acid soury taste , I have read this presentation is a symptom of mnd , but I have a open mind with this .
Would the2nd emg in November picke up any muscle issues I have now.
I thank anyone for taking there time for reading this.
Best wishes
Edd
Would anyone be kind enough to offer a listening ear and a bit of advice concerning my current symptoms.
I'm in my late 40s , never smoked , and don't really drink , 12 months ago I started to get all over muscle twitching.
A month later I had a thorough clinical exam with a professor in neurology all was normal , I then had a extensive emg July 2021 at a university hospital , on a few fasiculations were found in calfs , neurophysiologist said no evidence of mnd , possible bfs.
At the same time I started to get a consistent 24/7 soury mettalic taste in mouth , gp said possible silent reflux.thus taste has worsened to the point my lips are sticky and it causes me to lisp my words , ppi was prescribed , these have not worked , I had a private acid reflux test carried out , no reflux.
November 2021 second emg carried out again at the same hospital, fasiculations found in calfs no other findings,no evidence of mnd .
December 2021 2nd clinical work up with a neuro muscular who is also a mnd consultant , he just found slightly brisk reflexes and thankfully no evidence of mnd
February 2022 , private emg at private hospital , the consultant teaches emg to medical students, fasiculations found in calf muscles and in tongue , I questioned it and he said no evidence of mnd , I felt he rushed it and was no where as thorough as the previous two carried out at hospital.
The twitching is constant and I can induce them by tapping sometimes,they stop when I'm exercising.i can walk on my tose and heels and do normal things I do not feel I have any weakness, I've got to have a hip replacement which I've known about for last 3 years , this is due to years spent doing ultra marathons and triathlon, the taste in mouth is chronic acid soury taste , I have read this presentation is a symptom of mnd , but I have a open mind with this .
Would the2nd emg in November picke up any muscle issues I have now.
I thank anyone for taking there time for reading this.
Best wishes
Edd
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