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    Hi I'm Carol I would like to say Hello to everyone
    I have Had MND for two years I try to stay Positive
    but it is hard going sometimes .I welcome your comments
    on this Disease and all that you are going though at the moment
    look forward to hearing from you all.
    I looked at the other messages I will try to fill you in on my Journey My Husband
    Was very ill with cancer and COPD and I always look after him. Then I noticed one day
    that my Speech was very slurred I rang the doctor she said come around now.
    She I had a stroke she sent to me Neurological at the Royal London and in a few weeks I
    Had tests and They said I had MND . My husband passed away in November last year

    And I have trying to cope I go to the Day Hospice at St Josephs in Hackney they are so good there and I go to the neurological Group every month which is great support to me I just joined today
    Last edited by Sorrento45; 24 June 2019, 14:57.

    Hi Carol and welcome to the forum. You've had a basinful over the couple years or so and certainly didn't need an MND diagnosis on top of that. Although, actually I don't think there's anyone who needs it! My condolences on the loss of your husband. I hope you have found a way of coping with that - I know how awful that can be.

    This forum really is an amazing community - the support and encouragement is so freely given. I find that it helps me a lot. There is also much experience and knowledge that can be tapped into, so always feel free to ask any questions.

    Welcoming hugs from me. ((((()))))

    Trying to keep positive, but not always managing.


      Hi Carol and welcome to the forum;

      Sorry to hear of your journey and your husbands passing in November.

      I do wonder how it has progressed since Diagnoses. Hospices are normally good places for us.

      Please feel free to ask any questions or share things with us.

      Best wishes, Terry
      TB once said that "The forum is still the best source for friendship and information."

      It will only remain so if new people post and keep us updated on things that work or don't work and tips.

      Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


        hi n welcome, so sorry about your Husband x


          Hi Carol, and a warm welcome to this forum. So sorry to hear about your husband.


            Hi Carol and a warm welcome to the forum,

            I am so very sorry for your diagnosis and for the loss of your husband. It must be very hard for you to keep positive. I hope you have family around you to support you.

            The forum is a good place for emotional support and practical advice from people who really understand so it's great you've posted.

            Take Care of yourself,
            Love Debbie x


              Hi Carol and a warm welcome to the Forum.

              I'm so sorry about your husband, what a truly rough year you've had.

              It's good to hear you're being well looked after by your hospice and I hope you've got support from family and friends too.

              Take care.

              Love Ellie.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


                Hi Carol, welcome to our forum. I'm sorry about your husbands passing in November. You have certainly had a horrible couple of years. It's good that you go to a day hospice. Do you have carers or family to help at home? Take care, Lynne
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.