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    My brother

    Afternoon everyone thankyou for adding me. My brother has this dreadful disease. As a family we are devastated. I look forward to sharing this with you all as things develop

    #2
    Hello Norman and sorry to hear about your brother 😔
    Looking forward to seeing you around in the threads 👍

    Take care,
    James
    Foxes Never Quit 💙

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      #3
      Welcome to the forum Norman, it's a great source of information, support and good humour.
      Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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        #4
        Norman head A warm welcome to the forum Norman, also to Maurice.

        Love Ellie xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
        .

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          #5
          Norman head oh Norman I’m sure your all devastated. Everyone is at the beginning. It’s awful, it’s sad, it’s daunting and you wonder how you all will get through it. But you will. It does get easier, honestly, when you all will be able to focus on what is needed and the support that you will need. I am a my husbands carer. He was diagnosed almost 5 years ago. A little frail now but eating and swallowing ok and still walking. So my advise for your brother to is live life as positively as can he can be with the help of family support which is obvious he has got from you and other family. Thinking of you all.xx

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            #6
            Hi norman

            Welcome to our forum. Great bunch of people here to make you feel at home.

            Love and hugs
            Denise xxx
            when i can think of something profound i will update this.

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              #7
              Hi Norman. I'm sorry your family have been hit with this awful disease. I'm from a 6 sibling family and those first few months are rough.

              But the forum is an amazing place for advice or just a place to vent etc x
              Diagnosed May 2021 bulbar onset als.

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                #8
                Hi Norman and welcome to the forum.

                I so sorry for your brother's diagnosis but it's good you've found the forum. Lots of friendship and support on here from people who really understand.

                Take care of yourself,
                Love Debbie x

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                  #9
                  Norman head sorry to hear about your brothers diagnosis. It is devastating to have a family member affected. There are lots of supportive people on this forum.

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