Hi All my name is Tracey I was diagnosed with bulbar ALS in May 2022 although looking back my symptoms started beg February 2022 and life has changed so much in short space of time.
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Hi Tracy. Sorry for your diagnosis. I hope you have good family support. Welcome to this forum, the place to ask advice, have a good old moan or anything else to vent your feelings. Xx -
Hi Tracey, sorry about your diagnosis and that you feel it’s progressing quickly. Hopefully symptoms will slow or stabilise for a while.
Sending cwtches (Welsh hugs)
PaulineHi, I’m Pauline. Keeping positive, working through a bucket list with the love of my life, my husband Gareth.
Diagnosed July 2022 Bulbar onset ALS. PEG fitted but not used yet. Speech poor, some swallowing issues, right arm weakness and loss of dexterity, left arm getting weaker. Starting to feel unsteady on feet but still mobile.Comment
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Hi Tracey
sorry you find yourself here but the best place to be considering your circumstances.
I also hope things plateau and it gives you time to get the right support in place.
Love and hugs
Denise xxxwhen i can think of something profound i will update this.Comment
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A warm welcome to the forum, Tracey. xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Welcome to the Forum Tracey.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.Comment
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Welcome to the forum Tracey Mason,sorry to hear about your diagnosis I hope that you have some good support from the various medical people.Comment
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