Flail arm

[Double D]

That would be lovely but I wouldn’t dare ask your wife 🤣🤣. Unfortunately my Mrs left me during the first lockdown after 12 years together 🙁

[Beemer]

Hi Everyone, I’m looking to upgrade my shower to maintain my independence. I struggle to lift my hands above my waist so I’m considering infrared controls. The ceiling shower head works well but I currently have the flexible hose wedged upside down at low level to spray my armpits. This is not ideal because it regularly moves or falls out the bracket. Does anyone have similar issues and can you make any recommendations?

My arms are all but useless, so my wife gets in the shower with me.
I am assuming you cannot do the above, otherwise you would not be asking.
How do other people manage? How does a carer shower you if they do not get in there with you?
We have had a bluetooth shower fitted that can be operated from my phone.

[Double D]

Hi Everyone, I’m looking to upgrade my shower to maintain my independence. I struggle to lift my hands above my waist so I’m considering infrared controls. The ceiling shower head works well but I currently have the flexible hose wedged upside down at low level to spray my armpits. This is not ideal because it regularly moves or falls out the bracket. Does anyone have similar issues and can you make any recommendations?

[Ellie]

Hi DD,

I saw on another thread that you have a HeadUp collar - does it not offer good enough support for you to use eye gaze? I'm sorry you find it tiring - I am a full-time eye gaze user, so I know just what a lifeline it is...

Your head doesn't need to be fixed in the one position to use an eye tracker and, as I said on another thread, there are numerous collars to try until you land on the Goldilocks one.

Love Ellie.

[Double D]

Hi Terry,
I have used it but find it very tiring on my neck holding the exact position for it to read my eyes.

[Shaun]

Hello Barry
I'm not sure how I'm going to fair this season as my shoulder is playing up but determined to try, can always rely on ibuprofen and codeine to numb the pain, it worked last year.
Whilst I was searching for charity golf days I came across challangingmda.org, they give grants for people to experience new challenges and experiences, just thought if you wanted an even bigger challenge after your abseil
S

[Barry52]

Hi Shaun,

As a former lover of golf I would love to play a round with you. My grip is strong but if I took a swing off the tee I would fall A over T lol.

Barry

[Shaun]

Hello DD,
Thanks for letting me, so hopefully I've got a couple of years of golf left, have just enough grip on right hand,
Never got faciclations in my arms but they have started in my legs over the last 6 months.
Best wishes. Hoping you reach 6,000 + posts
S

[Terry]

DD do use your Eye gaze so you get used to it a little.

Yes Ellie, know your place.

I talk mainly rubbish and you give educated posts.

Love Terry

[Ellie]

Ellie,
Wow, 3660 posts.
Do you own this site

Egads, nooo!!

Just been around a long time and I am only in the halfpenny league compared to Terry

[Double D]

Ellie,
Wow, 3660 posts.
Do you own this site

[Ellie]

Great, I was just making sure you wouldn't be left hanging !!

[Double D]

Hi Ellie,
I'm still using a regular laptop and iphone although i have eye gaze for when things get worse.

[Ellie]

Hi DD,

Have you alternative ways of using your PC/tablet given your arm & hand weakness?

Love Ellie.

[Double D]

Arms and hands now have limited movement.
Speech deteriorated during last 3 years.
Neck weakened during last 2 years.
Legs are still good.