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  • Ellie
    replied
    Hi DD,

    I saw on another thread that you have a HeadUp collar - does it not offer good enough support for you to use eye gaze? I'm sorry you find it tiring - I am a full-time eye gaze user, so I know just what a lifeline it is...

    Your head doesn't need to be fixed in the one position to use an eye tracker and, as I said on another thread, there are numerous collars to try until you land on the Goldilocks one.

    Love Ellie.

    Leave a comment:


  • Double D
    replied
    Hi Terry,
    I have used it but find it very tiring on my neck holding the exact position for it to read my eyes.

    Leave a comment:


  • Shaun
    replied
    Hello Barry
    I'm not sure how I'm going to fair this season as my shoulder is playing up but determined to try, can always rely on ibuprofen and codeine to numb the pain, it worked last year.
    Whilst I was searching for charity golf days I came across challangingmda.org, they give grants for people to experience new challenges and experiences, just thought if you wanted an even bigger challenge after your abseil
    S

    Leave a comment:


  • Barry52
    replied
    Hi Shaun,

    As a former lover of golf I would love to play a round with you. My grip is strong but if I took a swing off the tee I would fall A over T lol.

    Barry

    Leave a comment:


  • Shaun
    replied
    Hello DD,
    Thanks for letting me, so hopefully I've got a couple of years of golf left, have just enough grip on right hand,
    Never got faciclations in my arms but they have started in my legs over the last 6 months.
    Best wishes. Hoping you reach 6,000 + posts
    S

    Leave a comment:


  • Terry
    replied
    DD do use your Eye gaze so you get used to it a little.

    Yes Ellie, know your place.

    I talk mainly rubbish and you give educated posts.

    Love Terry

    Leave a comment:


  • Ellie
    replied
    Originally posted by Double D View Post
    Ellie,
    Wow, 3660 posts.
    Do you own this site
    Egads, nooo!!

    Just been around a long time and I am only in the halfpenny league compared to Terry

    Leave a comment:


  • Double D
    replied
    Ellie,
    Wow, 3660 posts.
    Do you own this site

    Leave a comment:


  • Ellie
    replied
    Great, I was just making sure you wouldn't be left hanging !!

    Leave a comment:


  • Double D
    replied
    Hi Ellie,
    I'm still using a regular laptop and iphone although i have eye gaze for when things get worse.

    Leave a comment:


  • Ellie
    replied
    Hi DD,

    Have you alternative ways of using your PC/tablet given your arm & hand weakness?

    Love Ellie.

    Leave a comment:


  • Double D
    replied
    Arms and hands now have limited movement.
    Speech deteriorated during last 3 years.
    Neck weakened during last 2 years.
    Legs are still good.

    Leave a comment:


  • Double D
    replied
    Hi Shaun,
    I had fasciculations in one arm and finger cramps for a year and a half before MND diagnosed in Oct 2006.
    DD

    Leave a comment:


  • Shaun
    replied
    Hello HC & DD
    Flail limb diagnosed in November, had two years of hand and shoulder issues before getting it looked at.
    13 years , can I ask DD , how you are? My cons says I have slow progression , anywhere between 5 12 years
    S

    Leave a comment:


  • Double D
    replied
    Hi Happy Chappy,
    How are you doing.
    I've had flail arm for 13 years.

    Leave a comment:

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