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Increase in Pain After Painkillers In Evening

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    #1

    Increase in Pain After Painkillers In Evening

    Does anyone else have an issue with increasing pain after taking painkillers in evening? I take 2 x 30/500 co-codamol + Etoricoxib 90mg + diazepam 5mg + amitriptyline 10mg in the evening. The amitriptyline was transformational about two months ago when I started taking it as it stopped me being woken at three in the morning by some part of my anatomy shaking. Problem now is that when I take the tablets and go back to bed in the evening I get really bad back and leg pain, knees, ankles, and muscles.
    In the early evening I do sit up more than most of the rest of the day when I am reclined, so that I can eat dinner with my son. I can understand the back pain from that, but not the leg pain.
    Any thoughts would be appreciated.
    Thank you.
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    #2
    Do you take Riluzole also?

    OT can assess your bed and chairs and improve things to make you more physically comfortable, which in turn, could let you reduce the number of meds you take and/or reduce the doses.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user    .
    ​
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      #3
      Yes looking forward to the OT visit. They did call last week and I think are meant to be coming next week. Physio coming on Monday and speech on Wednesday.
      The pain in evening is so odd as I am also taking 2 x 30/500 co-codamol on three other occasions in the day as well. So I really shouldn't know what is going on. .

      I know you are very informed on the OT side of things. When I was in A and E a few weeks ago and the neuro OT team were with me (all very lovely). They said that a few years ago they would have gone through a catalogue and worked out what would be useful. They said now they cant do that. I don't know if true or not.

      I think what I need is to get the ability to rest back again, which seems to have gone in the last month. I still have my bedroom upstairs, which the OT at the hospital did talk about changing. Maybe it is just the effort of getting upstairs to bed that is putting my legs through a marathon.
      I have though now moved my morning pills to my bedside so that I can take them without having to go and hunt for them in the morning. Though still have to go down and get some breakfast. Its better in bed as I can rest the bowl by my mouth on the covers and therefore less arm movement and exhaustion from eating.
      Thank you Ellie for all your advice. As you say, not much more in the way of pain relief that I can take. So maybe time to stop fighting so much.
      Thank you again

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